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Satish Patel & Dr Sanjay Rayarel raised £1,180 from 28 supporters

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Closed 23/09/2016

157%
£1,180
raised of £750 target by 28 supporters

    Weʼve raised £1,180 to support the GNE Myopathy International Charity for our friend Mona Patel. http://www.gne-myopathy.org/

    London, United Kingdom
    Funded on Friday, 23rd September 2016

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Our Challenge:
    Satish: 26th Aug 2016, Cycle Round Lake Leman (Lake Geneva): c170 KM
    Sanjay & Satish: 14th–17th Sep 2016, London to Paris Bike Ride: 120-130 KM per day for 4 days

    You can take pleasure in knowing that it will be a long and painful challenge.

    Your donation: We both decided to self-fund these events and therefore 100% of your donation will be received by the charity for its research.

    Why?
    We’ve known Mona for nearly 20yrs and unfortunately, she has a rare muscle disease called GNE Myopathy. It’s a rare genetic condition from birth, but the symptoms only present in early-adulthood. I want to share my personal account of seeing this disease take its effect on her through the holidays we’ve shared.

    17yrs ago: Our first holiday to the Far East & Australia; she had a funny walk, a tendency to trip over; we put this down to her love of heels and cocktails. She managed to climb Sydney Harbour Bridge.
    15yrs ago: Thailand; needed a hand when getting into a pool with steps.
    12yrs ago: Egypt; she started to need a walking stick.
    6yrs ago: St Lucia; a few years on, she needed 2 walking sticks, wheelchair at times, full support into the pool and the odd piggyback
    4yrs ago: Mauritius; a lot more support, needed a wheelchair and help into the pool
    2yrs ago: Bali; reliant on a mobility scooter (which my kids and I love to joyride) and a walker. She needed 2 people to assist her into the pool. Her shoulders/arms are weakened so she couldn’t protect herself during a fall leaving her with stitches on her head.
    Today, she continues to fight on...

    The above shows how this disease eats away and takes effect on the whole body. However, over this time I can’t recall a single time when I’ve seen Mona feeling sorry for herself. She is always optimistic, funny and courageous. She still loves to experience life to the fullest.
    When she mentioned she was raising awareness of this charity, we both felt it was a fab opportunity to help via our challenges

    Updates

    4

    • Satish Patel & Dr Sanjay Rayarel4 years ago
      Satish Patel & Dr Sanjay Rayarel

      Satish Patel & Dr Sanjay Rayarel

      4 years ago

      Update from the Page owner

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    • Satish Patel & Dr Sanjay Rayarel4 years ago
      Satish Patel & Dr Sanjay Rayarel

      Satish Patel & Dr Sanjay Rayarel

      4 years ago

      Update from the Page owner

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    • Satish Patel & Dr Sanjay Rayarel4 years ago
      Satish Patel & Dr Sanjay Rayarel

      Satish Patel & Dr Sanjay Rayarel

      4 years ago

      All, thanks for all the positive messages and support. I am glad to say that that we finished the ride, it was grilling route and the weather played its part it making it worse. Normally Day 1 is the difficult day but Day 3 was the day the most people needed the recovery bus due to riding through wind farm that were turning at decent speed !!, will attach a Video. Couple of pictures and will add more soon.

      Update from the Page owner

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    4 years ago

    Satish Patel & Dr Sanjay Rayarel started crowdfunding

    Leave a message of support

    Page last updated on: 9/22/2016 20.42

    Supporters

    28

    • Minesh Patel

      Minesh Patel

      Sep 22, 2016

      Selectavine Ltd

      £30.00

    • Craig Dyer

      Craig Dyer

      Sep 19, 2016

      £10.00

    • Raj, Annie, Jaimini and Kyle

      Raj, Annie, Jaimini and Kyle

      Sep 19, 2016

      Well done for completing the ride and raising money for a great cause. Hopefully I will be able to join you all for the next big ride.

      £30.00

    • Anonymous

      Anonymous

      Sep 16, 2016

      £30.00

    • Anonymous

      Anonymous

      Sep 14, 2016

      £10.00

    • Nigel

      Nigel

      Sep 14, 2016

      Good luck with the ride

      £20.00

    • Anonymous

      Anonymous

      Sep 14, 2016

      All the best Satish & Sanjay... hope you get back safely for a few more rides before the snow comes... Cheers Mark

      £30.00

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    About Crowdfunding
    About the fundraiser
    Satish Patel & Dr Sanjay Rayarel

    Satish Patel & Dr Sanjay Rayarel

    London, United Kingdom

    Message from Mona I live with this rare muscle disease called GNE Myopathy, it was a shock when it started to impact in my mid-twenties. Please read my comment for my full message and details on this charity as this field was restricted on words. Thank you.

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