I've raised £130000 to 32y/o single mum needs lifesaving neurosurgery in USA.Rare cond’t damaging spine & brainstem Lets save her life&secure her families future

Organised by Samantha Smith
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Manchester, UK ·Health and medical

Story

"I must now fundraise for my own life and for my babies to have the mummy they so desperately need and deserve. I am in constant pain in my neck, head and spine and week in, week out my neurological damage is becoming harder to ignore."

32y/o Samantha is a single mum and Psychotherapist from Gtr.Manchester and is in need of raising funds on a time-sensitive mission to pay for life saving neurosurgery in the USA.

Samantha’s condition is deteriorating as she awaits funds to book the surgeries. with deterioration, comes further complication and increased costs.

Without surgery, Samantha‘s body will cruelly deteriorate until she loses her fight.

WITH YOUR HELP, she can regain a ’normal’ quality of life, returning to the fun loving mummy and dedicated psychotherapist she was less than two years ago.

A lack of provisions in the UK for EDS related neurosurgeries, means that Samantha‘s only option is to fund the care with a very confident and experienced surgeon in the USA; but this comes at a large cost. A cost she can not fulfil alone.

So far Samantha's amazing supporters have helped her to raise £121,000 via another fundraising platform, but we need to raise more before she can book the surgery for JANUARY 2019.

For the most benefits; her surgeon has recommended early January 2019 for the operations which will stabilise her spine, reduce pressure off her spinal cord and alleviate damage and pressure on her brainstem.

Samantha needs these operations whilst her body is in a position to recover well and regain the majority of functioning with the operation.

A life with EDS means a life with little to no public healthcare.

Health professionals rarely understand this condition which affects the body's ability to create stable connective tissues. A future of rehabilitation, private care & financial stability are secondary to surgeries, yet, will be hugely required due to EDS and her whole body de-conditioning whilst bed and wheel-chair bound.

Samantha's medical story ...

Samantha has EDS but was only recently diagnosed, despite being born with the genetic condition.

No Neuro-surgeons are willing to operate on Samantha in the U.K. and so Samantha's journey has seen her needing to raise hundreds of thousands of pounds to go abroad for survival since a RTA in 2016.

She has a connective tissue disorder called Ehlers Danlos Syndrome (EDS-Type1).

Connective tissues hold the body and its organs together, but faulty connective tissues cause complications & pain. Because of the spinal instability and muscle loss, she now has multiple daily dislocations throughout the whole body day and night.

Whilst she wasn't diagnosed with EDS until recently, she had lived with pain and some mild mobility difficulties at times over her lifetime; This however, never stopped her achieving her dreams of becoming a full time psychotherapist, columnist and building a private clinical practice (2014-2017) ,. She was an avid gym goer and incredibly independent; All whilst fulfilling her most important role as an active hands on single mummy to her two young children.

However, now her spine is collapsing and dislocating; the damage to her spinal cord is affecting her bodily systems. Aggressive neuro-surgery can relieve these pressures and stabilise her life. However, without surgery soon, the damage will become irreversible.

Please help us to achieve this target and overcome the cost of surgeries which is the one obstacle between Samantha living a full and 'able' life ... or dying young.

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About fundraiser

Samantha Smith
Organiser

Donation summary

Total
£34,341.69