Help Save Isla's Life: One Last Chance for Treatment

Our little girl, Isla, is 3 and a half years old. She loves dancing, singing, and the swings at the park, where she flies “up high like a butterfly in the sky!”

She gives the best hugs, is full of life, and has a laugh that lights up the room. But despite her bubbly personality, Isla is facing a reality no child should ever have to live through.

Isla's Story

At just 18 months old, Isla was diagnosed with Acute Myeloid Leukaemia (AML), an aggressive blood cancer. Worse still, she has a rare chromosome translocation (6;11), which makes her disease even harder to treat and more likely to come back.

When Isla got sick, our whole world changed, everything stopped. I had to give up work and become her full-time carer. Life became incredibly hard.

For the first nine months, the hospital was our home. There were no breaks, just endless sleepless nights and quiet tears in bathroom corners so she wouldn’t see. We had to be strong for her, because she needed us to be.

And she was strong. Stronger than any child should ever have to be.

Since her diagnosis in August 2023, Isla has endured:

• Multiple rounds of intense chemotherapy

• Bone marrow aspirations

• A stem cell transplant in December 2023

• An experimental CAR-T cell therapy and a second transplant in February 2025

Each time, we hoped. But each time, the cancer returned.

Despite everything, Isla remains the strongest little human ever.

She dances with the nurses, makes friends wherever she goes, and tries her best to be a “normal” little girl, even when she’s hooked up to machines and fighting for her life.

Our Final Option

We are now facing our final option: a pioneering treatment at the Princess Máxima Center for Pediatric Oncology in Utrecht, Netherlands.

This treatment uses a drug called Ziftomenib – a menin inhibitor that specifically targets the genetic mutation driving Isla’s cancer.

This drug is not available in the UK for children Isla’s age, and no clinical trials here are open to her. But in the Netherlands, she has a chance.

If she qualifies, treatment must begin within the next 4–6 weeks, before her disease progresses further.

What We’re Raising Money For

We’re a private family and never imagined asking for help like this. But now, we need to raise £100,000 to cover:

• Medical treatment: at least £64,000 for the first 2 cycles

• Potential PICU stay: £10k (1 week), £20k (2 weeks)

• Accommodation: 2 months in Ronald McDonald house: £1000

• Living expenses during treatment

• Visas and insurance

• Post-treatment care

Why This Matters

There are no curative options left for Isla in the UK. This treatment in the Netherlands could be her only chance to survive and grow up as the funny, creative, brilliant girl she is. She wants to go to nursery. To make friends. To dance. To be “just like the other kids.”

She has fought so hard for so long. Now, we are asking others to fight with her. With us.

Please help us give Isla the chance she deserves. No donation is too small. Sharing her story could help save her life.

From the bottom of our hearts,

Thank you !

Georgeta and Tom

Isla’s Mum and Dad