Sebb is 4years old, has been diagnosed with Christianson Syndrome which is a rare genetic disorder along with other conditions.

Sebb has 4 siblings and 1 dog-Sebb's therapy dog. Sebb has a twin sister Faye, Brother 5, brother 13 and sister 15.

Sebb requires 24hour care with dressing, feeding, playing.

Sebb is unable to sit, stand, walk or talk and has severe sight deficiencies.

Sebb is now getting bigger and is getting more difficult to carry him around for transfers and up the stairs to bed.

Sebb has been approved for a downstairs bedroom/wetroom extension with specialised bed, ceiling hoist, specialised bath, shower and changing mat.

There is government funding for the extension but there will be a deficit of £15,000 so we are doing fund raising events to raise some funds but giving anything will help immensely for us to reach our target and get Sebb's extension completed.