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Sharon Gilbert raised £3,407 from 116 supporters

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Closed 18/03/2022

0%
£3,407
raised of £1,000 target by 116 supporters

    Weʼve raised £3,407 to help with the cost of moving near the hospital, while Lola-May has daily radiotherapy.

    Funded on Friday, 18th March 2022

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    Story

    In 2020 after 3 years of investigations Lola-May at 16 years old was diagnosed with a Tumour on her spine – An Intradural Extramedullary Tumour which was wrapped around her nerves and spinal cord. Without surgery the tumour would continue to grow and inevitably cause paralysis with loss of use to the legs, bowel and bladder. The only treatment for this type of tumour is surgery. Lola was admitted to Addenbrookes in Cambridge where she spent nearly three months with two major spinal surgeries. This has left her with neurological loss and impaired sensation/feeling in her lower body, legs and feet. Due to the location of the tumour and risks surgeons removed as much of the tumour as was safe to. Several small fragments were unfortunately too dangerous to remove. After surgery Lola received daily Physio in Addenbrookes to aid her to sit and walk again. A set back came when after two days of returning home she developed Sepsis and was re admitted to resus in Addenbrookes followed by a third surgery through the night and then days in the Critical Care Unit on a 2 to 1 watch. Due to Covid restrictions Lola’s parents were only allowed to be with her one at a time during her time in hospital. Under the watchful eye of her surgeon, her oncologist and neurology team Lola has slowly recovered to a point where she was finally able to begin college in September. Unfortunately last month at her latest MRI check up it has shown that the tumours have grown significantly and others developed higher up her spine too. After many meetings, scans and samples sent for analysis Lola will now be heading to Addenbrookes for 7 weeks for daily radiotherapy. This treatment will not shrink them but hopefully slow their growth. Lola will be moving with mum/dad to Cambridge to ensure she has a comfortable place to rest during this time and where she can make the best of Christmas and her 18th birthday. Come January they hope to know the next steps.

    Updates

    3

    • Sharon Gilbert2 years ago
      Sharon Gilbert

      Sharon Gilbert

      2 years ago

      We are week 5 into treatment and despite all the stops & starts & side effects we are finally into a routine. Lola has good & bad days but we are really proud of how she is coping. We are all looking forward to a few normal days at home for Christmas and Lola's 18th & will resume treatment after 28th. The biggest THANK YOU in the world would not be enough to show the amazing support and encouragement we've had from so many, some whom we do not even know, but here it is, THANK YOU for your love & kindness, we wish you a very Happy Christmas xx

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    • Sharon Gilbert2 years ago
      Sharon Gilbert

      Sharon Gilbert

      2 years ago
      Update from the Page owner

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    • Sharon Gilbert2 years ago
      Sharon Gilbert

      Sharon Gilbert

      2 years ago

      Lola started treatment last week and knowing she can stay near the hospital with her mum has made a huge difference, thank you x

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    2 years ago

    Sharon Gilbert started crowdfunding

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    Page last updated on: 12/31/2021 19.36

    Supporters

    116

    • Diane & Derek.

      Diane & Derek.

      Dec 31, 2021

      All our love Lola. xx

      £40.00

    • Anonymous

      Anonymous

      Dec 27, 2021

      £5.00

    • Hele.n Duke

      Hele.n Duke

      Dec 27, 2021

      Money collected Carol singing by a group of AHS parents. Love and best wishes to you and your family. Xx

      £20.00

    • Annie M

      Annie M

      Dec 27, 2021

      £20.00

    • Anonymous

      Anonymous

      Dec 27, 2021

      £10.00

    • Jo Huttley

      Jo Huttley

      Dec 24, 2021

      Thinking of you all x

      £20.00

    • Patsy Withers

      Patsy Withers

      Dec 19, 2021

      thinking of you all sending love and prayers love Patsy

      £20.00

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    Sharon Gilbert

    Sharon Gilbert

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