I was diagnosed with Hereditary Haemorrhagic Telangectasia (HHT) 7yrs ago after i collapsed with a potentially fatal clot in my lungs,although the main symptoms are ferocious unexplained nosebleeds, i also have gastric/bowel bleeding, mouth,arterial bleeds from my fingers and liver avms.... there is no cure for this progressive disease with only iron and blood transfusions to stabilise us.I’d be lost without the kniwlegde and support of HHT Ireland 🩸a luxury my late dad and brother never had ... I will do this walk on June 12th to support HHT Ireland and to raise much needed awareness to help make the path easier for those patients coming behind us .