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£1,615raised of £4,500 target by 41 supporters

Weʼre raising £4,500 to Help Karen live independently for as long as possible with her daughter Gwen and the rest of her loving family. Please read her story......

Lichfield, UK

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My name is Karen, I'm 47 and I gave birth to my beautiful daughter Gwen in August 2012. Back then, I was healthy, happy, and working hard at the Environment Agency and looking forward to my new life as a mum.

It was within a year of having Gwen I started to get pain in my left arm. My GP told me it was probably due to the way I held Gwen and that it would go. The pain never stopped, and at times I was completely unable to move my arm. I started to get other symptoms; my legs ached, I had severe insomnia and randomly I would not be able to move. I was sent for further tests and investigations and diagnosed with peripheral neuropathy.

Within two years, the symptoms got a lot worse and I was diagnosed with Parkinson's disease. I had to give up work, and it became almost impossible to do normal day-to-day activities. I cannot live independently as without medication I literally cannot move. Even on my good days, simple tasks like making a drink are near impossible, and some days I can't even hug my daughter Gwen. Life is incredibly hard and what breaks my heart the most is seeing the impact it is having on my family.

I have become progressively worse. The neurologists are shocked at how quickly I have deteriorated. They no longer think I have just Parkinson's, they now think it is Multiple System Atrophy (MSA-P). This is a much more aggressive life limiting disease which cannot be fully diagnosed until post mortem. Obviously, we are devastated.

At present there is no cure for either MSA-P or Parkinson's Disease, so as much as we're hoping for a miracle we must also be realistic. Our main aim is to keep Gwen's life as normal as possible for as long as possible. She is an amazing little girl.

Unfortunately, my home is not suitable for my needs as I need a single storey property. This is not within our reach financially, so we are making adaptations to my home which will enable me to continue living with my family for as long as possible.

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Karen Addis

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    24 days ago

    Karen Addis started crowdfunding

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    Page last updated on: 8/15/2018 10:02 PM



    • Anonymous


      Aug 15, 2018


    • Ian Stanton

      Ian Stanton

      Aug 15, 2018

      So sad to hear your story Karen- it’s dreadful when terrible things happen to wonderful people- lots of love xx

    • Norma and Dave Wilford

      Norma and Dave Wilford

      Aug 15, 2018

      You are a brave and strong lady. I am sure you will reach your target and get your house adapted to suit your needs. David and I are thinking of you. Lots of love. xxx


    • Tracy Scotton

      Tracy Scotton

      Aug 15, 2018

      Good luck with your fund raising my lovely ❤❤


    • Helen Bates

      Helen Bates

      Aug 15, 2018

      Dear Karen, I would give anything to take this horrible disease away from you. You are a wonderful lady. Hope this small donation helps you achieve your goals. Much love xx


    • Zak Edwards

      Zak Edwards

      Aug 15, 2018

      Sending you lots of love Karen. If there's anything we can do, please let us know. You're amazing! All our love Zak & Bianca x x x


    • Rachel Ashworth

      Rachel Ashworth

      Aug 15, 2018

      Lots of love to you and yours. The Ashworths xxx


    Karen Addis

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    About the fundraiser
    Karen Addis

    Karen Addis

    Lichfield, UK

    Karen's daughter Gwen, and other family members will be taking part in the Lichfield family fun run and 10k on the 9th September. The event takes place in Lichfield, King Edwards at 10.30. Please come along and support our family. It will mean such a lot to us all. Thank you xx

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