Weʼve raised £4,615 to Help Karen live independently for as long as possible with her daughter Gwen and the rest of her loving family. Please read her story......
- Lichfield, UK
- Funded on Tuesday, 20th November 2018
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
My name is Karen, I'm 47 and I gave birth to my beautiful daughter Gwen in August 2012. Back then, I was healthy, happy, and working hard at the Environment Agency and looking forward to my new life as a mum.
It was within a year of having Gwen I started to get pain in my left arm. My GP told me it was probably due to the way I held Gwen and that it would go. The pain never stopped, and at times I was completely unable to move my arm. I started to get other symptoms; my legs ached, I had severe insomnia and randomly I would not be able to move. I was sent for further tests and investigations and diagnosed with peripheral neuropathy.
Within two years, the symptoms got a lot worse and I was diagnosed with Parkinson's disease. I had to give up work, and it became almost impossible to do normal day-to-day activities. I cannot live independently as without medication I literally cannot move. Even on my good days, simple tasks like making a drink are near impossible, and some days I can't even hug my daughter Gwen. Life is incredibly hard and what breaks my heart the most is seeing the impact it is having on my family.
I have become progressively worse. The neurologists are shocked at how quickly I have deteriorated. They no longer think I have just Parkinson's, they now think it is Multiple System Atrophy (MSA-P). This is a much more aggressive life limiting disease which cannot be fully diagnosed until post mortem. Obviously, we are devastated.
At present there is no cure for either MSA-P or Parkinson's Disease, so as much as we're hoping for a miracle we must also be realistic. Our main aim is to keep Gwen's life as normal as possible for as long as possible. She is an amazing little girl.
Unfortunately, my home is not suitable for my needs as I need a single storey property. This is not within our reach financially, so we are making adaptations to my home which will enable me to continue living with my family for as long as possible.
Updates appear here
Karen Addis started crowdfunding
Leave a message of support
Nov 14, 2018
Good luck Karen
Nov 13, 2018
To such a lovely lady! Sending you lots of love from Nic & family xxxxx
Nov 13, 2018
Thinking of you all and praying for a cure Karen. Emma xx
Nov 9, 2018
Hope you are successful in raising enough money x
Emily and Steve Hayes xxx
Nov 4, 2018
All our love to such a gorgeous family xxxxx
Oct 27, 2018
Kaz, I think this completes your target. Love ya! x
Oct 21, 2018
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About the fundraiser
Karen's family are hosting a family fun day at The Pear Tree Social Club in Rugeley ws15 1nt, between 1pm and 4pm. Entrance fee( give what you can) There will be a cake sale, tombola,raffle, games for all ages and face painting. Please come along and support our family. Xx