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£4,621raised of £10,000 target by 41 supporters

Weʼre raising £10,000 to fund Xavi's ongoing therapy

Cambridge, UK

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Story

Our gorgeous boy, Xavi, had a tough start to life, on delivery he suffered a skull fracture and lack of oxygen which led to a brain bleed and permanent brain damage, he was resuscitated for 19 minutes and spent the first 6 weeks of his life in intensive care. He now has cerebral palsy, general development delay, epilepsy and feeding problems.

We have recently enrolled Xavi on a clinical trial at Duke University where he will be receiving 3 rounds of stem cell therapy with the view that this will improve his gross motor skills (standing, walking etc) and hopefully see improvements in other areas ie communication.

We have been raising money to fund the four trips we need to make to the US and we also need to make sure we have enough left over to provide intensive therapies when we come home to maximise the benefits of the Stem Cells.

We know there is no magic cure for Xavi’s brain injury, but we really believe that the more we do in terms of therapy in these crucial early years the more chance he has of his brain rewiring and building new pathways, this could greatly improve his quality of life as he gets older and help him learn skills that he otherwise wouldn’t have gained.

We have already seen big improvements from HBOT (Hyperbaric Oxygen Therapy) and we believe that in a lot of cases the young brain is capable of much more healing than we are led to believe.

We would be really grateful for any fundraising ideas or donations to help us reach our goal.

Thank you

Sian and Mark xx

Thanks for taking the time to visit my JustGiving page.

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Sian Johnson

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    9 months ago

    Sian Johnson started crowdfunding

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    Page last updated on: 8/13/2018 7:30 PM

    Supporters

    41

    • Donna DeSousa-Schmidt

      Donna DeSousa-Schmidt

      Aug 13, 2018

      With love from Maggie's Mission. xoxoxoxoxo

      £30.00

    • Neil Johnson

      Neil Johnson

      Jul 15, 2018

      From Nico, Mika, Gio and Caio –Rhian and Neil's friends in Paraty – good luck Xavi x

      £20.00

    • Jeff Brown

      Jeff Brown

      Jul 6, 2018

      £20.00

    • O Apê da Lapa - Fred + Oti

      O Apê da Lapa - Fred + Oti

      Jul 5, 2018

      Donated by restaurant O Apê da Lapa in Rio, run by the lovely Fred and Oti, who donated the price of our post-run celebratory meal to help Xavi. Abraços, F+O+N+R

      £120.00

    • K Hankinson

      K Hankinson

      Jul 3, 2018

      From Pat and I for Rhian and Neil's run4Xavi.

      £150.00

    • Jonathan Wells

      Jonathan Wells

      Jul 2, 2018

      Sian and Mark, I was very moved by your story. Your little boy looks so wonderful. Here's wishing you and Xavi all the best. Jonathan (ex colleague/mate of Rhian's)

      £20.00

    • Natalie and Samir

      Natalie and Samir

      Jul 2, 2018

      Amazing effort for a very worthy cause. Well done!

      £50.00

    Sian Johnson

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    Sian Johnson

    Sian Johnson

    Cambridge, UK

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