Weʼve raised £10,789 to A Surgery for a Complex life threatening cancer
- Health and medical
- Time left
- Funded on Tuesday, 26th September 2017
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My name is Sian Kwan and I am 38 years old. I have two young children, 8 and 3.
I was diagnosed on 01/17 with cholangiocarcinoma. A rare type of liver cancer within the bile ducts. This was a complete shock as I do not drink and am in good health. I did ask the GP in October to examine a lump I had found but it wasnt until December (first found in October) that I was sent for a CT scan
After 5 weeks of debate with medical teams- I was told it didn't make any difference to my treatment in waiting so long for them to make a decision (which was completely untrue) I was offered an appointment in Leeds for pre-op. however after another MRI I was told I needed chemotherapy first.
I have started round 5 of chemotherapy last week. Leeds refused to look at a scan I had in March and missed the chance again to operate. Had they reviewed the scan at that time, there would have been no growth and I would have been able to have it removed. I was told by the oncologist that although the cancer has not spread and it is only slightly bigger the Leeds team have decided not to operate and instead I have been told I may need further therapy before I am reviewed again.
But once again I am awaiting to hear back from the team. I was told that they were making the decision for my treatment 25/05/17, yet I have not been informed what is happening and the oncologist is away until 01/06/17, which means yet another week of waiting to hear about treatment offers. I do not have the time to wait.
This include other treatments but I was told that I need to wait a month after chemo and a month after to see if successful. so this leaves me vulnerable for the tumour to spread for a further two months. I am now actively seeking private and urgent medicine treatment- I am doing this research myself. It is very stressful and adds to the distress we are going through.
Any help will gratefully received.
Thank you from the bottom of my heart.
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Sian Kwan started crowdfunding
Leave a message of support
Patricia Perez Arias
Sep 19, 2017
Wishing you reaching your goal and full health. Claire told me your story. I have two children too, you have all your life ahead of you to live. I shared on FB x
Sep 15, 2017
Good Luck and best wishes from all at RiskSTOP charity walkers
Sep 13, 2017
Sep 13, 2017
I just read your story via the BBC website - I wish you all the best
Sep 13, 2017
Hi Sian,I work with Jackie Davenport and her wish for a birthday present was a donation towards your treatment.Good luck with the future and I hope this helps in some way.
Meg and Steven Batch
Sep 8, 2017
Sending best wishes to you all
Sep 3, 2017
From a collection of 5ps (and other small change!) by your colleagues at Dorset County Hospital Dietitians Department. X
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