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£5,254raised of £6,000 target by 173 supporters

Weʼre raising £6,000 to Raise money for 2 Charities; Cystic Fibrosis Trust and CHIEF (Cystics of Hull Independent Equipment Fund). We are Sofia's Soldiers.💪

Kingston upon Hull, United Kingdom

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Story

Sofia is the beautiful daughter of my very close friends Dave and Emma Barrick (and I'm proud to say my God daughter). Following routine tests they were given news that no parent ever wants to hear. Here is more information written by them;

Sofia's Soldiers are a group of people from all walks of life completing challenges, events, cake sales, charity sports matches, basically anything to raise money for our chooses charities for 2018 CF Trust and CHIEF.

Until April this year we knew very little about Cystic Fibrosis, however with our daughter Sofia's diagnosis at 3 weeks old we have continued to learn more about the condition.

CF is a genetic disorder affecting both the respiratory and digestive systems. It causes infertility and breathlessness. People with CF need combinations of daily physio, antibiotics, multi vitamin supplements, enzymes with food, regular visits to clinics, hospital stays involving IV treatments and in many cases double lung transplants. This is a progressive disorder with no cure. Currently the average life expectancy for someone with CF is just 41 years of age.

Fortunately our daughter has one of the rarest types of CF which entitles her to the 'wonder drug' Kalydeco at the age of 2. Only 5% of CF patients have this mutation making them eligible for treatment. Although this doesn't cure CF, it helps to relieve most of the symptoms of it.
We are so thankful that our daughter can have this ground-breaking and life changing treatment but such drugs are only possible because of continuing research. This is exactly why Sofia's Soldiers are on a mission to raise as much money as possible for these charities who use donations for invaluable research in the hope of one day finding a cure. It also helps develop new medication and treatments that can improve quality and duration of a CF patient's life.

We hope for a 'life unlimited' for Sofia as well as for all other CF patients fighting the same battle. Your kind donations to this amazing charity will help to achieve this.

Thank you

Emma and Dave Barrick

To become a soldier or help in anyway message me!

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Updates

2

  • Richard Robinson3 months ago
    Richard Robinson

    Richard Robinson

    3 months ago

    Update from the Page owner

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  • Richard Robinson7 months ago
    Richard Robinson

    Richard Robinson

    7 months ago

    Meet Sofia!

    Update from the Page owner

    Share this update to help us raise more

7 months ago

Richard Robinson started crowdfunding

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Page last updated on: 8/12/2018 2:20 PM

Supporters

173

  • Richard Robinson

    Richard Robinson

    Aug 12, 2018

    Money raised from Hull KR shirt auction won by Phil Sykes

    £160.00

  • Richard Robinson

    Richard Robinson

    Aug 10, 2018

    Cash donation from Jayne Taylor added

    £10.00

  • Katie Cawkwell

    Katie Cawkwell

    Aug 3, 2018

    Some more from Tough Mudder

    £30.00

  • Jo Winney

    Jo Winney

    Jul 30, 2018

    Well done to the Tough Mudder soldiers. You crazy kids x

    £10.00

  • John, Louise and Georgia

    John, Louise and Georgia

    Jul 30, 2018

    Well done to the tough mudders!

    £10.00

  • Rachael Garmston

    Rachael Garmston

    Jul 29, 2018

    Well done to you all on Tough Mudder!! xx

    £10.00

  • Anonymous

    Anonymous

    Jul 28, 2018

    Beautiful family... lots of love xxxx

    £10.00

Richard Robinson

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About the fundraiser
Richard Robinson

Richard Robinson

Kingston upon Hull, United Kingdom

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