I've raised £6000 to Raise money for 2 Charities; Cystic Fibrosis Trust and CHIEF (Cystics of Hull Independent Equipment Fund). We are Sofia's Soldiers.💪

Organised by Richard Robinson
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Kingston upon Hull, United Kingdom ·Health and medical

Story

Sofia is the beautiful daughter of my very close friends Dave and Emma Barrick (and I'm proud to say my God daughter). Following routine tests they were given news that no parent ever wants to hear. Here is more information written by them;

Sofia's Soldiers are a group of people from all walks of life completing challenges, events, cake sales, charity sports matches, basically anything to raise money for our chooses charities for 2018 CF Trust and CHIEF.

Until April this year we knew very little about Cystic Fibrosis, however with our daughter Sofia's diagnosis at 3 weeks old we have continued to learn more about the condition.

CF is a genetic disorder affecting both the respiratory and digestive systems. It causes infertility and breathlessness. People with CF need combinations of daily physio, antibiotics, multi vitamin supplements, enzymes with food, regular visits to clinics, hospital stays involving IV treatments and in many cases double lung transplants. This is a progressive disorder with no cure. Currently the average life expectancy for someone with CF is just 41 years of age.

Fortunately our daughter has one of the rarest types of CF which entitles her to the 'wonder drug' Kalydeco at the age of 2. Only 5% of CF patients have this mutation making them eligible for treatment. Although this doesn't cure CF, it helps to relieve most of the symptoms of it.
We are so thankful that our daughter can have this ground-breaking and life changing treatment but such drugs are only possible because of continuing research. This is exactly why Sofia's Soldiers are on a mission to raise as much money as possible for these charities who use donations for invaluable research in the hope of one day finding a cure. It also helps develop new medication and treatments that can improve quality and duration of a CF patient's life.

We hope for a 'life unlimited' for Sofia as well as for all other CF patients fighting the same battle. Your kind donations to this amazing charity will help to achieve this.

Thank you

Emma and Dave Barrick

To become a soldier or help in anyway message me!

About fundraiser

Richard Robinson
Organiser

Donation summary

Total
£5,420.78