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Richard Robinson raised £5,420.78 from 183 supporters

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Closed 31/12/2018

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£5,420raised of £6,000 target by 183 supporters

    Weʼve raised £5,420 to Raise money for 2 Charities; Cystic Fibrosis Trust and CHIEF (Cystics of Hull Independent Equipment Fund). We are Sofia's Soldiers.💪

    Kingston upon Hull, United Kingdom
    Funded on Monday, 31st December 2018

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    Story

    Sofia is the beautiful daughter of my very close friends Dave and Emma Barrick (and I'm proud to say my God daughter). Following routine tests they were given news that no parent ever wants to hear. Here is more information written by them;

    Sofia's Soldiers are a group of people from all walks of life completing challenges, events, cake sales, charity sports matches, basically anything to raise money for our chooses charities for 2018 CF Trust and CHIEF.

    Until April this year we knew very little about Cystic Fibrosis, however with our daughter Sofia's diagnosis at 3 weeks old we have continued to learn more about the condition.

    CF is a genetic disorder affecting both the respiratory and digestive systems. It causes infertility and breathlessness. People with CF need combinations of daily physio, antibiotics, multi vitamin supplements, enzymes with food, regular visits to clinics, hospital stays involving IV treatments and in many cases double lung transplants. This is a progressive disorder with no cure. Currently the average life expectancy for someone with CF is just 41 years of age.

    Fortunately our daughter has one of the rarest types of CF which entitles her to the 'wonder drug' Kalydeco at the age of 2. Only 5% of CF patients have this mutation making them eligible for treatment. Although this doesn't cure CF, it helps to relieve most of the symptoms of it.
    We are so thankful that our daughter can have this ground-breaking and life changing treatment but such drugs are only possible because of continuing research. This is exactly why Sofia's Soldiers are on a mission to raise as much money as possible for these charities who use donations for invaluable research in the hope of one day finding a cure. It also helps develop new medication and treatments that can improve quality and duration of a CF patient's life.

    We hope for a 'life unlimited' for Sofia as well as for all other CF patients fighting the same battle. Your kind donations to this amazing charity will help to achieve this.

    Thank you

    Emma and Dave Barrick

    To become a soldier or help in anyway message me!

    Updates

    2

    • Richard Robinson11 months ago
      Richard Robinson

      Richard Robinson

      11 months ago

      Update from the Page owner

      Share this update to help us raise more

    • Richard Robinson1 year ago
      Richard Robinson

      Richard Robinson

      1 year ago

      Meet Sofia!

      Update from the Page owner

      Share this update to help us raise more

    1 year ago

    Richard Robinson started crowdfunding

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    Page last updated on: 9/17/2018 11.21

    Supporters

    183

    • Richard Robinson

      Richard Robinson

      Sep 17, 2018

      Cash donation from Cathy Leafe, Thanks Cathy!

      £10.00

    • Anonymous

      Anonymous

      Sep 15, 2018

      £2.00

    • Adam McGowan

      Adam McGowan

      Sep 12, 2018

      The Floss

      £2.00

    • Christian Robinson

      Christian Robinson

      Sep 12, 2018

      Can and Will NOT flush Dance! So take my Money! I know you didnt tag me... and dont tag me later 😂👍 viking regards from Robinson clan in the east

      £10.00

    • Richard Robinson

      Richard Robinson

      Sep 12, 2018

      #floss4fia

      £2.00

    • Scott and Helen

      Scott and Helen

      Sep 11, 2018

      Great work on Saturday lads!

      £30.00

    • Vic and Elaine

      Vic and Elaine

      Sep 9, 2018

      Well done to Dave and all of Sofiassoldiers

      £20.00

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    About Crowdfunding
    About the fundraiser
    Richard Robinson

    Richard Robinson

    Kingston upon Hull, United Kingdom

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