Your friends are fundraising. Don't miss out, opt in.

0

%

£1,121raised of £3,000 target by 51 supporters

Weʼre raising £3,000 to buy a specially adapted bike for Somhairle ( pronounced Sorley)

Stirling, UK

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Somhairle is a 4 year old fun loving wee boy who, without any advance warning, was diagnosed with Duchenne Muscular Dystrophy at the age of 3 1/2 .

His parents could see that he was a little slower in walking than other kids, couldn’t really run very well, had trouble climbing stairs and never could jump. He was always falling over as well.    Even seeing this, no one could prepare themselves for the devastating news that he had Duchenne Muscular Dystrophy.

Duchenne Muscular Dystrophy is a cruel muscle wasting condition which, despite ongoing medical research, there is currently no cure or way to reverse it’s horrible effects.  Affecting almost exclusively boys, it is always 100% fatal, but good medical management nowadays see’s more of the boys living into their 20’s.  DMD is rare; for every million people alive in the UK today, 24 have Duchenne Muscular Dystrophy.

Somhairle has to take medication every day now and uses a wheelchair for longer walks and by the time his is around 8-12 he’ll use a powered wheelchair all the time. He loves swimming and being on his bike, however, because of his condition, he hasn’t got the balance or muscle strength for a regular bicycle and the risk of serious injury if he falls off is really high.  Thankfully there are specially adapted or constructed tricyles that he will be able to safely use and enjoy for several years to come.  He’s been measured up for his own TOMCAT FIZZ which will be built for him in lightweight materials with special gearing, braking, seat supports and footplates. The bike is futureproofed with adaptations that can be added as Somhairle’s condition deteriorates.   The bike can also be quickly converted to a tow along behind mum or dads bike for longer trips.

He’s looking forward to starting Primary School after the summer and being able to get out and about safely on his very own custom bike and living life to the full.

Share this story

Updates

0

Somhairle

Updates appear here

    6 months ago

    Somhairle started crowdfunding

    Leave a message of support

    Page last updated on: 7/1/2018 6:28 AM

    Supporters

    51

    • Heather Campbell

      Heather Campbell

      Jul 1, 2018

      Have fun on your new bike!

      £10.00

    • Claire Mackay

      Claire Mackay

      Jun 22, 2018

      Donation from the staff at Dunblane xx

      £50.00

    • Gordon Todd

      Gordon Todd

      Jun 21, 2018

      £10.00

    • Anonymous

      Anonymous

      Jun 21, 2018

      £30.00

    • Zelda Ure

      Zelda Ure

      Jun 20, 2018

      Hope you have lots of fun on your new bike xx

      £20.00

    • John Burgoyne

      John Burgoyne

      Jun 13, 2018

      Have fun!

      £20.00

    • Anonymous

      Anonymous

      Jun 13, 2018

      £30.00

    Somhairle

    Become a supporter

    Help Somhairle raise more

    About the fundraiser
    Somhairle

    Somhairle

    Stirling, UK

    Somhaire is a 4 year old fun loving wee boy who, without any advance warning, was diagnosed with Duchenne Muscular Dystrophy at the age of 3 1/2 .

    Report this Page

    * JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.

    Donate