I have been admin for a small group on Facebook for just over a year for Sophie but as her younger brother also has complex needs, we as a team decided that it would be better to support both children.
Sophie is 3 years old and baby Adam is one year old.
Sophie has been fed via an Ng tube since she was able to eat as she has problems digesting food. She is underweight and her parents are concerned. She is currently in the midst of changing hospital, this is all explained in the children's FB group called Sophie & Adam Story.
Adam has many allergies which makes his little life difficult for him. He also is fed via a tube as there are few foods he can eat without his skin reacting. He comes up in flares or sores around his entire body and face which can be very painful. His parents have to smother him in special creams a few times a day in the hopes it will help him. The body sock that has been used previously is expensive and not available on the NHS. We are raising money to aid the family with their regular trips to the hospital as well as the living aids that both the children need. Any questions can be answered via the children's group. Thank you for supporting Sophie & Adam Story.