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Liz edes raised £12,833.7 from 300 supporters.

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Closed 12/08/2018

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£12,833raised of £11,210 target by 300 supporters

    Weʼve raised £12,833 to buy specialist eye gaze technology for Sophie

    Aylesbury, United Kingdom
    Funded on Sunday, 12th August 2018

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    Story

    Sophie was diagnosed with Rett syndrome in February 2017. As Sophie's parents Mark and I were devastated by the diagnosis. We were told she is likely to never walk, she is likely to loose the use of her hands, and never speak a word to us.....ever. There is currently no cure for Rett Syndrome. What ever skills she has she is likely to regress and loose those for life too. Professionals class it as a 'locked in syndrome'. Her brain is trying to say and do tasks but the connections get confused or just won't work. I can't imagine how she feels watching children run and play, while she sits and tries her hardest to join in. Day to day life would be 1000 times easier if we could have a solid way of communicating. So We know what she wants to do or how she feels etc. That's where eye gaze comes in. She can communicate to us through an eye gaze computer. What she might like to eat or drink, or maybe even if she would like to watch TV or have a cuddle. If she's upset or frustrated, she can tell us why. I may even hear her call me mummy for the first time. Something I've longed to hear. This computer system isn't cheap (tobii dynavox), with the specialist eye gaze equipment and software... Just over £11,000.00 to give Sophie a voice. We ask you to donate anything you can to help us build up the funds for her. We shall be doing various fundraisers too so watch this space for those. Thank you for taking the time to read this and a massive thank you for donating what you can. Liz, Mark and Sophie x

    Updates

    2

    • Liz edes6 months ago
      Liz edes

      Liz edes

      6 months ago
      Update from the Page owner

      Already 35% there - £4000 raised so far, thank you to everyone who had donated so far and who has shared the link. It is really appreciated. THANK YOUUUUUUU xx

      Share this update to help us raise more

    • Liz edes7 months ago
      Liz edes

      Liz edes

      7 months ago
      Update from the Page owner

      Thanks to everyone who has donated already!! Please keep sharing and donating! Already over 20% there!!

      Share this update to help us raise more

    10 months ago

    Liz edes started crowdfunding

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    Page last updated on: 7/5/2018 9:59 AM

    Supporters

    300

    • Sam & Trish Q

      Sam & Trish Q

      Jul 5, 2018

      Well done guys! Beating the target. Keep it moving

      £50.00

    • Mark Edes

      Mark Edes

      Jul 4, 2018

      A massive thank you to Carina Quinlan for the money you have raised for Sophie.

      £182.50

    • Mark Edes

      Mark Edes

      Jul 4, 2018

      A massive thank you to Jane Edes for the quiz you organised to raise money for Sophie.

      £641.00

    • Anonymous

      Anonymous

      Jul 4, 2018

      £10.00

    • Mark Edes

      Mark Edes

      Jul 4, 2018

      Thank you to Gill Pearton for your donation.

      £25.00

    • Mark Edes

      Mark Edes

      Jul 4, 2018

      Thank yo to Barbara Gurtenne for your donation.

      £5.00

    • Mark Edes

      Mark Edes

      Jul 4, 2018

      A massive thank you to Dave Thompson for all the work you have done in raising money for Sophie.

      £300.00

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    About Crowdfunding
    About the fundraiser
    Liz edes

    Liz edes

    Aylesbury, United Kingdom

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