Inspired by the life of Alexandra Murphy, our aim is to raise awareness of HHT and, more specifically, pulmonary AVMs. We wish to support individuals and families affected by this rare condition, and raise funds to help with research and treatment.

Hereditary Haemorrhagic Telangiectasia is an inherited genetic disorder that affects the blood vessels. People with HHT have some blood vessels that have not developed properly and sometimes cause bleeding, known as arteriovenous malformations (AVMs). There is no cure for HHT, which has many complications - some of which are life-threatening - and treatment depends on the parts of the body that are affected by the condition.

By telling Alex’s story, we hope it can help others to live fun and rewarding lives.

We are a small family run charity, and very much appreciate your time and generosity. More information is available on our website: https://alexandramurphyhht.foundation