My son was born on 30 December 2015 and although I knew there was something wrong, nothing can quite prepare you for the shock when they tell you your tiny baby will have life long issues. We all want our children to thrive and be healthy, so when I first heard he had Aarskog Scott Syndrome, and by the way I had no idea what this was at the time, my world was turned upside down. However, thanks to the support of family, friends and complete strangers who also have children with the same genetic disorder, I am in a much better place. My son, Noah, is a happy and healthy (apart from the developmental challenges he faces every day) young boy, he is my world! Which is why I am raising money for a very worthwhile charity. I know there are many worthwhile causes out there, some more widely known than others, which is why, in my opinion, it is important to give to those who do not have the PR gurus working for them, in addition to my interest, my beautiful boy! Please donate something - anything! It all counts and it will very very appreciated! This walk is a real challenge for me given I am a very busy self employed mother of three. Thank you for taking the time to read this and for your donation - this will be used wisely in creating more awareness of this rare syndrome and to fund the ongoing research into this genetic disorder.