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stephen West raised £3,116.45 from 64 supporters.

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Closed 31/01/2018

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£3,116raised of £30,000 target by 64 supporters

    Weʼve raised £3,116 to Fund a safe living environment for Michael who suffers with Phelan-McDermid Syndrome.

    Aylesbury, United Kingdom
    Funded on Wednesday, 31st January 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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    Story

    On the 3rd May 2013 we had a beautiful healthy baby boy or so we thought. At first glance you would think that Michael Harry is just like any other normal child but sadly he suffers from a very rare genetic disorder called Phelan McDermid Syndrome (PMS). It affects 1 in 5 million worldwide. To over simplify this he is missing parts of his DNA. PMS is associated with Global developmental delay, severe learning difficulties, poor fine motor skills, hypotonia and a range of other issues within the autistic spectrum. Michael is non verbal and there is currently no way to communicate with him in anyway he is basically a baby in a toddlers body.
    One of the side effects of PMS is that the person continually tries to chew everything around them, from clothing and furniture to electric cables it all goes straight in the mouth just like a baby. This is particulary
    hazardous as Michael has no sense of danger and with no way to explain it to him he is at constant risk.
    If you are a parent you will know what a constant worry children are, now try to imagine if your child hurt themselves and had no way to tell you. For example if Michael fell and fractured a bone in his arm we wouldn't know, of course he'd be crying but he cries all the time anyway.
    We recently managed to move to a bungalow to remove the risk of stairs as he was getting too big for stair gates. The purpose of this page is to try and raise enough money to help us adapt the property to give us an open plan living area so that Michael can be watched at all times whilst still being able to lead a more normal life. Caring for Michael is a 24/7 task which is tiring, challenging, and is a one way street because he gives nothing back, if we can get this project funded it will make a massive difference to the whole family in terms of quality of life. Due to the fact that Michael is mobile despite his severe mental impairment he doesn't qualify for any grants or help with this type of project. Thank you for Listening.


    Updates

    8

    • stephen West6 months ago
      stephen West

      stephen West

      6 months ago
      Update from the Page owner

      Share this update to help us raise more

    • stephen West10 months ago
      stephen West

      stephen West

      10 months ago

      Hi Folks, Just a quick update. Good news planning permission for the proposed adaption has been approved and can start once I have sorted a contractor. Thank you for all the continued support and for getting us up to 10%.

      Share this update to help us raise more

    • stephen West1 year ago
      stephen West

      stephen West

      1 year ago

      Big Thank you to all the Ladies from Figures for Women in Bicester, all your fundraising efforts are much appreciated. 😀

      Share this update to help us raise more

    1 year ago

    stephen West started crowdfunding

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    Page last updated on: 1/24/2018 7:33 AM

    Supporters

    64

    • Anonymous

      Anonymous

      Oct 31, 2017

    • Aneta

      Aneta

      Sep 1, 2017

      X

    • Anonymous

      Anonymous

      Sep 1, 2017

    • Sharon Maison

      Sharon Maison

      Aug 25, 2017

      Wishing you every success in fundraising for your beautiful son xx

      £100.00

    • Kelly and everyone at FFW

      Kelly and everyone at FFW

      Aug 17, 2017

      A contribution to say thank you for everything you do for us and to help towards your target.With lots of love and best wishes from Kelly and all the staff/members at Figures For Women <3 xxx

      £276.45

    • Craig Miskin

      Craig Miskin

      Aug 16, 2017

      Steve and family. Sad to have read the story but glad to be able to help just a little. Fingers crossed on the fundraising front.

      £20.00

    • Margaret Miskin

      Margaret Miskin

      Aug 16, 2017

      Hope you manage to reach your target. We were so sorry to read about your little boy. Good luck.Margaret and John Miskin

      £50.00

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    About Crowdfunding
    About the fundraiser
    stephen West

    stephen West

    Aylesbury, United Kingdom

    For more information on PMS please go to: http://www.pmsf.org.uk/

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