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Steven Ellerington raised £235 from 12 supporters


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Closed 08/07/2017

raised of £500 target by 12 supporters

    Weʼve raised £235 to Weʼre raising £500 to help fund a paediatric AED machine for Corey and the community, also help towards medical costs, hospital and hospice

    Funded on Saturday, 8th July 2017

    Don't have time to donate right now?


    Corey Alway was born 2 months early. Since his birth in July 2014, he has spent 6 months as an inpatient in Bristol Childrens Hospital and has just had his 277th day appointment. He has two genetic problems called '16p13.3 duplication syndrome' and 'Kabuki syndrome'. These genetic disorders cause many complex medical problems and developmental delays. He suffers from Hydrocephalus, hearing and sight problems and polymorphic intractable epilepsy. At it's worse Corey will siezure 300+ times a day. Although he has these health issues he never lets them hold him back. There is little known about his genetic problems, and the severity of his epilepsy, so Coreys mum and dad have been advised to build memories with Corey and live each day as it comes.
    Steve will be attempting to run from Hartland to Bude on Saturday 17th June, 16 miles along the coastal path. Monies raised will be going towards a paediatric AED machine for home and ongoing hospital and hospice visits.



    Steven Ellerington

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      6 years ago

      Steven Ellerington started crowdfunding

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      Page last updated on: 6/19/2017 07.25



      • Anonymous


        Jun 19, 2017


      • Bethany Flynn

        Bethany Flynn

        Jun 18, 2017

        Super effort for a great cause.


      • Jon Michael

        Jon Michael

        Jun 18, 2017

        Huge congrats to you all for running so far in the heat for a great cause. Brilliant effort!!


      • Brian Slingsby

        Brian Slingsby

        Jun 18, 2017

        Congrats Steve on such a brilliant fundraising run for little Corey & his family. Now rest those knees! Brian & Carolyn


      • Mark & Hazel Drew

        Mark & Hazel Drew

        Jun 17, 2017

        Very worthy cause! Well done Steve.


      • J Libretto

        J Libretto

        Jun 17, 2017

        Well done everyone


      • Clare


        Jun 17, 2017

        Wish it could be more, but well done such an amazing achievement x


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      Steven Ellerington

      Steven Ellerington

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