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Steven Ellerington raised £235 from 12 supporters
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Closed 08/07/2017
Iʼve raised £235 to Weʼre raising £500 to help fund a paediatric AED machine for Corey and the community, also help towards medical costs, hospital and hospice
- Funded on Saturday, 8th July 2017
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Story
Corey Alway was born 2 months early. Since his birth in July 2014, he has spent 6 months as an inpatient in Bristol Childrens Hospital and has just had his 277th day appointment. He has two genetic problems called '16p13.3 duplication syndrome' and 'Kabuki syndrome'. These genetic disorders cause many complex medical problems and developmental delays. He suffers from Hydrocephalus, hearing and sight problems and polymorphic intractable epilepsy. At it's worse Corey will siezure 300+ times a day. Although he has these health issues he never lets them hold him back. There is little known about his genetic problems, and the severity of his epilepsy, so Coreys mum and dad have been advised to build memories with Corey and live each day as it comes.
Steve will be attempting to run from Hartland to Bude on Saturday 17th June, 16 miles along the coastal path. Monies raised will be going towards a paediatric AED machine for home and ongoing hospital and hospice visits.
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Supporters
12
Anonymous
Jun 19, 2017
£5.00
Bethany Flynn
Jun 18, 2017
Super effort for a great cause.
£10.00
Jon Michael
Jun 18, 2017
Huge congrats to you all for running so far in the heat for a great cause. Brilliant effort!!
£20.00
Brian Slingsby
Jun 18, 2017
Congrats Steve on such a brilliant fundraising run for little Corey & his family. Now rest those knees! Brian & Carolyn
£20.00
Mark & Hazel Drew
Jun 17, 2017
Very worthy cause! Well done Steve.
£20.00
J Libretto
Jun 17, 2017
Well done everyone
£10.00
Clare
Jun 17, 2017
Wish it could be more, but well done such an amazing achievement x
£5.00
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