My beautiful granddaughter Lucia was diagnosed with a genes disorder at the age of 6 months. Basically, part of a chromosome was deleted leaving her with severe intellectual disability.
1p36 deletion has effected her speech, vision, hearing and left her unable to walk. Private therapy is expensive as is the mobility equipment that she quickly grows out of.
Lucia is a happy little girl and being able to walk for just short distances unaided, would be such a great leap forward for her. We can then move on to other areas where we can improve her quality of life.
I am taking part in the Peak district Trekfest on 1st Sep, 50 km around the Peaks in under 15 hours. It's certainly not a walk in the park! Any donations big or small would be amazing.
Thank you for reading 😘