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Closed 31/08/2018

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£1,110raised of £200 target by 52 supporters

    Weʼve raised £1,110 to The Osteopetrosis Support Trust in memory of Willow Riggans

    Glasgow, UK
    Funded on Friday, 31st August 2018

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    Story

    My brother John and I are completing the Rouken Glen 10k on Thursday 7th June 2018 to raise money in memory of Willow May Rossi Riggans, Wonder Willow, for The Osteopetrosis Support Trust

    Willow was the daughter of close friends Lousa Rossi & Steven Riggans, affectionately known as Wonder Willow

    The trust provides support to families of children with Malignant Infanile Osteopetrosis. Willow’s family have received support even after her passing.

    https://osteopetrosis-support-trust.org.uk/

    We hope to raise more awareness for this condition to honour Willow and for other families affected

    Wonder Willow’s Story

    Willow May Rossi Riggans was born on 13th July 2017 at 5 weeks early, weighing 3lb 13oz. After 5 weeks in hospital due to low calcium and Vitamin D, as well as slow growth she was allowed home.

    A week later she was back in for a day to have a blood transfusion due to low haemoglobin. Another week later Willow was back in to hospital again with low platelets. Again, another transfusion was needed.

    Willow continued to attend hospital for weeks at a time while blood tests, scans and various other examinations were being carried out.

    Following weekly hospital visits Willow was diagnosed with Malignant Infantile Osteopetrosis, a genetic condition which only effects 1 in 250,000 children worldwide.

    https://en.wikipedia.org/wiki/Osteopetrosis

    Life expectancy of this condition is no more than 10 years old with most children only surviving until 2 years of age without transplant.

    Willow received her bone marrow transplant from for mum who was her stem cell donor, on the 12th of December. Her transplant was showing signs of working however due to her her low immunity because of the chemotherapy she developed a virus which damaged her liver.

    Following 3 long months in hospital having her chemo and transplant, Willow passed away on 5th February 2018 with her family all around her and her in the arms of her mummy and daddy. Willow was 6 and a half months old.

    Updates

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    steven mcmaster

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      7 months ago

      steven mcmaster started crowdfunding

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      Page last updated on: 6/21/2018 1:17 PM

      Supporters

      52

      • Staff @ QEUH

        Staff @ QEUH

        Jun 21, 2018

        Hi Louisa and Steven,We would like to donate £100 to Wonder Willow's fund.This is money we have left over from the collection we had for your lovely mum Clare.....from all staff at QEUH. Xxx

        £100.00

      • Lynn Drummond

        Lynn Drummond

        Jun 12, 2018

        £10.00

      • Sarah McMaster

        Sarah McMaster

        Jun 10, 2018

        Well done boys, here's to an even thousand 😊 xx

        £20.00

      • steven McMaster

        steven McMaster

        Jun 10, 2018

        For Willow

        £26.00

      • John McMaster

        John McMaster

        Jun 10, 2018

        £20.00

      • claire MCCafferty

        claire MCCafferty

        Jun 10, 2018

        Well done guys!

        £10.00

      • John McMaster

        John McMaster

        Jun 8, 2018

        From Eilidh McMillan

        £10.00

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      About Crowdfunding
      About the fundraiser
      steven mcmaster

      steven mcmaster

      Glasgow, UK

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