Weʼve raised £330 to Help Fund Treatment For Emil Mason
- Darlington, United Kingdom
- Children and youth
- Time left
- Funded on Thursday, 28th September 2017
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The page owner is responsible for the distribution of funds raised.
I am running the Ealing Half Marathon to raise funds for treatment for Emil Mason.
Emil is 3 years 6 months old at the time of writing and was born very premature at 31 weeks via an emergency c-section. At the age of 1, Emil was diagnosed with Cerebral Palsy, specifically bilateral spastic legs with some difficulties in his arms too. Emil’s type of Cerebral Palsy results in very high muscle tone, which means his leg muscles are incredibly stiff, he quite often struggles to control the movements himself and he is unable to stand or walk unaided. He requires a Kaye walker at present to get around. Day to day activities are completely compromised but Emil is an amazing, smiley little boy who is extremely determined and wants to be involved in everything with family, friends and the dog. He remains positive and resilient.
Physiotherapy and medication are very much part of Emil’s daily life and he deals with this very well at his young age but as time passes the pain in his legs and arms will increase as the muscles tighten with growth.
There is a life-changing operation suitable for Emil. The procedure is called Selective Dorsal Rhizotomy (SDR), which involves cutting the sensory nerves in the lower spine, in turn reducing the abnormal messages Emil currently receives from his sensory nerves. SDR is not currently funded by the NHS but is offered as a “self-funding” programme. His family are therefore responsible for the cost of the surgery and months to years of intensive physiotherapy post-operation. We now need to start to raise around £40,000 to make this happen. The family intend to fund it themselves as much as possible but will need help to raise the rest.
I would be so grateful for any support to help Emil gain the quality of life he so rightly deserves.
On bahalf of Helen Mason, Lindz, Sebastien and most importantly Emil.
- 9 months ago
Stewart Thompson9 months ago
£170 so far, including £35 donated offline. Many thanks to everyone who has donated so far but I won't be happy until I've reached my target for Emil! Training is back on track after a calf injury. Onwards and upwards!
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Stewart Thompson started crowdfunding
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Sep 25, 2017
Had to donate given how much you've hobbled today!
Sep 20, 2017
Good luck Stewart
Sep 19, 2017
.......you can do it & in a record time too (failure will result in a significant amount of beer owed to your buddies)
Sep 18, 2017
Good Luck Stewart
Sep 18, 2017
Jun 26, 2017
Good luck Stewart
Jun 7, 2017
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