Story
Hi folks, after our Mighty Stride efforts last year, we've decided to go again so myself and my best Sassenach friends Simon & Wayne will be joined by my daughter Megan in tackling the Glasgow KiltWalk on Sunday the 27th April 2025.
Why are we putting ourselves through the pain of hiking 23 miles AGAIN you ask....well to be frank, thanks to your kindness last year we smashed our target and raised £800 for wee Jamie Tierney...something that made a huge difference to the little fella & his family....so despite the fact we're older, stiffer, creakier, greyer.....we're going again and we're aiming to top what we raised last year.
But enough about us...here is a timely reminder from Jamie's family as to why we're really doing it:
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On the 30/03/2022 our world fell apart when we were told our son Jamie has been diagnosed with Duchenne Muscular Dystrophy.
This was instant heartbreak for us after our research on the disease. Duchenne , knowing as DMD is a terminal illness which is found mainly in boys , it effects approximately 1 in 5000 live male births.
DMD is a muscle wasting disease which effects all muscles in the body including lungs heart and brain.
The information that we received is our boy will face a life of struggle, will be wheel chair bound between 8-10 years old and would deteriorate in front of our eyes , with the average life expectancy of mid 20s.
There is currently no cure for this disease , however we will never give up or stop fighting to save our sons life. We are so grateful to announce that we have recently received confirmation that Jamie can get a specialised treatment overseas every 4 months. This treatment will cost us around £60,000 annually but will help us slow this disease down hopefully giving Jamie a better chance and quality of life, with us constantly fighting and praying a cure comes. The funds will go towards Wee Jamie’s Journey and helping save our boys life and we will continue to help support all other boys fighting DMD.
With all this in mind Jamie is still our little best friend he never fails to make us laugh and smile , he's just your typical boy , loves pretending he's a monster or a dinosaur chasing us around or just cuddling in on the couch watching movies . He loves being outdoors playing in puddles or sandpits , he truly is the love of our life and we will do whatever it takes to save him. We are truly grateful for any donations we may receive no matter how little or large
If in the future we are lucky enough to secure a cure for Jamie all funds raised that is remaining will be donated to help other boys in our sons position to hopefully help change the lives of everyone diagnosed with this devastating disease.
https://linktr.ee/weejamiesjourney
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Honestly, the dedication the family show never fail to inspire us so we're asking again, please help us raise much needed funds to allow this little man to experience those things in life that we all take for granted....it means so much and it never ceases to make a difference.
Thank you all