We welcomed our little boy into the world on the 28th August 2013, little did we know of the journey we were about to embark on.

Reuben was diagnosed with a rare genetic brain disorder called Joubert Syndrome along with some other serious complications with his gorgeous brain, after a horrendous 1st 6 weeks of his life we finally began to understand that there were some serious challenges up ahead for us as a family and that Reubs would have quite the battle to stay alive and also to thrive.

Reuben is solely fed via his gastrostomy as his coordination and unsafe swallow makes eating nearly impossible, he has required full resuscitation on numerous occasions during his little life and is on Oxygen overnight and when tolerated in the day to try and help his erratic breathing along with helping him stay oxygenated, he likes to keep us on our toes and totally entertained! His makaton signing is coming on leaps and bounds and we are starting to be able to communicate more effectively together which has helped with a lot of Reub's behaviours, he is a wonderful little Superboy who continues to teach us a lot and we are grateful to be able to call such an amazing dude our son

We moved into a bungalow 2 years ago and need to make some pretty dramatic adaptations to our home to ensure it is more accessible, functional, safe and hopefully fun for Reubs and the rest of our family.

We have made some great headway into our HUGE target of £80,000 already achieving over half!! Please help us in anyway you can, pop us forward for any sponsorship from your places of work, share our story with all your friends and family and please donate, we can achieve this!

Thank You

Sophie and Mike

Reuben's mum and dad

xx