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Sophie Condie raised £350 from 11 supporters

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Closed 03/12/2018

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£350raised of £38,000 target by 11 supporters

    Weʼve raised £350 to Help make adaptations to our home for our Little Superboy Reuben

    Funded on Monday, 3rd December 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    We welcomed our little boy into the world on the 28th August 2013, little did we know of the journey we were about to embark on.

    Reuben was diagnosed with a rare genetic brain disorder called Joubert Syndrome along with some other serious complications with his gorgeous brain, after a horrendous 1st 6 weeks of his life we finally began to understand that there were some serious challenges up ahead for us as a family and that Reubs would have quite the battle to stay alive and also to thrive.

    Reuben is solely fed via his gastrostomy as his coordination and unsafe swallow makes eating nearly impossible, he has required full resuscitation on numerous occasions during his little life and is on Oxygen overnight and when tolerated in the day to try and help his erratic breathing along with helping him stay oxygenated, he likes to keep us on our toes and totally entertained! His makaton signing is coming on leaps and bounds and we are starting to be able to communicate more effectively together which has helped with a lot of Reub's behaviours, he is a wonderful little Superboy who continues to teach us a lot and we are grateful to be able to call such an amazing dude our son

    We moved into a bungalow 2 years ago and need to make some pretty dramatic adaptations to our home to ensure it is more accessible, functional, safe and hopefully fun for Reubs and the rest of our family.

    We have made some great headway into our HUGE target of £80,000 already achieving over half!! Please help us in anyway you can, pop us forward for any sponsorship from your places of work, share our story with all your friends and family and please donate, we can achieve this!

    Thank You

    Sophie and Mike

    Reuben's mum and dad

    xx

    Updates

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    Sophie Condie

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      1 year ago

      Sophie Condie started crowdfunding

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      Page last updated on: 8/8/2018 9:23 PM

      Supporters

      11

      • Anonymous

        Anonymous

        Aug 8, 2018

        Well done Emilie. Hope this helps Reuben in some small way xx

      • Agnieszka Reeves

        Agnieszka Reeves

        Aug 5, 2018

        Well done to Emilie Lumbard for her massive engagement and support for Ruben!

        £50.00

      • Anonymous

        Anonymous

        Aug 5, 2018

        Well done Emilie, good cycling.. Love Jack Youster x

        £10.00

      • Rosemarie Griffiths

        Rosemarie Griffiths

        Aug 4, 2018

        Go Emilie! Well done for helping love Rosemarie, Gareth, Harri and Hannah x

        £10.00

      • Sarah Newcombe

        Sarah Newcombe

        Aug 3, 2018

        Well done Emilie!! Love Sophie xx💕

        £10.00

      • Sarah Newcombe

        Sarah Newcombe

        Aug 3, 2018

        Well done Emilie! Love Sophie 💕xx

        £10.00

      • George, Sally, Annabel & Bea

        George, Sally, Annabel & Bea

        Aug 3, 2018

        Good luck Emilie - what a brilliant thing to do! You are awesome!! Xxx

        £30.00

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      Sophie Condie

      Sophie Condie

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