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Jo Shirran raised £500 from 9 supporters.

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Closed 05/08/2017

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£500raised of £500 target by 9 supporters

    Weʼve raised £500 to Help Charlie stay in remission from Neuroblastoma with life saving treatment in USA. Grandma is doing a sponsered wingwalk on 19th July!!

    Location
    Trowbridge
    Time left
    Funded on Saturday, 5th August 2017

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    Story


    Welcome!

    Thank you for visiting the fundraising page of our Superhero Charlie Shirran, a gorgeous 1 year old little boy who was devastatingly diagnosed with stage 4 high risk neuroblastoma in March 2016, at just 9 months old.

    What is neuroblastoma?

    Neuroblastoma is a cancer of specialised nerve cells called neural crest cells. These cells are involved in the development of the nervous system and other tissues. This type of cancer almost always only occurs in children. There are many types of neuroblastoma but they are broadly classified into low, medium or high risk, each with different treatments and prognoses.

    Unfortunately, Charlie has the most aggressive high risk form. On diagnosis, the cancer had already spread to his bones, which is how his Mum & Dad discovered it, after noticing a hard lump on his face. It is very rare for a child under 12 months to be diagnosed with such an aggressive form. In fact, Charlie may well be the only baby in Australia to be diagnosed with high-risk neuroblastoma this year.

    Charlie's Treatment 

    The duration of standard treatment, which Charlie is currently undergoing, is 12 months long. He has had 4 months of intensive chemotherapy through a central line in his chest, major surgery to remove his primary tumour, a 5 week long stem cell transplant where he was kept in isolation because of the risk of infection and he is now embarking on radiotherapy followed by 5 months of immunotherapy.

    The treatment he is receiving will very likely lead to long term chronic health problems eg deafness, infertility, heart failure, learning disorders etc. According to best evidence, this will give him a 50/50 chance of still being alive in 3-5yrs. That's better than 15yrs ago when this diagnosis would almost certainly have been a death sentence.

    Updates

    2

    • Jo Shirran4 months ago
      Jo Shirran

      Jo Shirran

      4 months ago

      Thank you to a lady in mums local boots who donated £5!

      Share this update to help us raise more

    • Jo Shirran4 months ago
      Jo Shirran

      Jo Shirran

      4 months ago

      Thank you to mums family who have donated £300 - I am unable to post offline donations unfortunately...

      Share this update to help us raise more

    4 months ago

    Jo Shirran started crowdfunding

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    Supporters

    9

    • Anonymous

      Anonymous

      Jul 21, 2017

      You are all in our thoughts and prayers. Charlie you are an amazing little man with an amazing family! Special mention to Grandma Clem who is clearly very brave and bonkers!! love Dave, Jac and Don

      £250.00

    • Ros Shirran

      Ros Shirran

      Jul 19, 2017

      £20.00

    • Adele Phillips

      Adele Phillips

      Jul 18, 2017

      Good luck!!!

      £20.00

    • Nicola Cane

      Nicola Cane

      Jul 18, 2017

      Best of luck Clem!! Love to the family xxx

      £100.00

    • Emma Khanna

      Emma Khanna

      Jul 17, 2017

      Sending our lovely Clem the Gem tons of luck as she soars the skies this week for our Superman Charlie! Go Supergran! 💛 Lots of love,Em, Akhil, Maya & Dilan xxxx

      £20.00

    • No name

      No name

      Jul 12, 2017

      good luck Clem. xxx love Chris and Allen Gough

      £20.00

    • Liesl Savage

      Liesl Savage

      Jul 6, 2017

      Go Clem! Loads of love and a special big hug to your gorgeous brave little grandson. Liesl, Ed, Michaela, Dom & Molly xxxxx

      £20.00

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    About Crowdfunding
    About the fundraiser
    Jo Shirran

    Jo Shirran

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    Trowbridge

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