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Zara Picken raised £7,562 from 279 supporters

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Closed 11/04/2019

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£7,562raised of £5,000 target by 279 supporters

    Weʼve raised £7,562 to support Flynn and his family through treatment for Orbital Rhabdomyosarcoma, a rare childhood cancer.

    Lincoln, UK
    Funded on Thursday, 11th April 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    We are raising money for our beautiful 3 year old son Flynn, who has cancer.

    Flynn’s Story

    Flynn is a happy, energetic and intelligent little boy who loves his sister Casey, playing in the park and learning about dinosaurs.

    In December, staff at Flynn’s nursery noticed that he had a slightly drooping eyelid. On closer inspection, there was a mass growing from under his eyelid at an alarming rate. After 3 inconclusive visits to the GP, we were referred to the local hospital, where he underwent a biopsy 2 days after Christmas. The following day, we received a devastating phone call informing us that it was a malignant cancer.

    Subsequent tests revealed it was an aggressive type of cancer called a Rhabdomyosarcoma (RMS) in his right orbit. RMS is a rare condition that affects soft tissue such as muscle, affecting fewer than 60 children in the UK each year.

    Treatment

    Flynn has just completed an initial 7 weeks of chemotherapy at Nottingham Children’s Hospital until March, some of which is intensive and involves hospital stays. Though he has taken it in his stride and is trying to carry on in his usual energetic way, it is exhausting for him and makes him feel very ill. He has already endured sickness, hair loss, and hospital stays for blood transfusions and neutropenia.

    A large portion of the tumour was removed as part of his initial biopsy. However, due to the location of the tumour, surgery cannot be used to remove it completely.

    This means that he will continue to receive further rounds of chemotherapy. We have also been told by consultants that he requires Proton Beam Therapy, a type of radiotherapy that specifically targets the cancer but causes less damage to the surrounding tissue. It is particularly valuable for children, reducing the risk of serious permanent side effects from conventional radiotherapy.

    Raising Money

    We have been told by doctors that we need to travel to Florida in less than a month’s time and stay for up to two months while Flynn receives Proton Beam Therapy. The Proton Beam Therapy service is a nationally commissioned service funded by the NHS in England. Therefore, the NHS will fund treatment and all travel costs including flights and accommodation for Flynn and the two of us, for which we are incredibly grateful. However, all other costs will need to be paid by ourselves.

    We will need to find money to cover expenses to take Flynn’s one year old sister Casey with us - we need to keep our family together to look after each other. We also need to cover lost income and pay for living expenses while we are there and bills at home.

    Thank You

    Thank you for reading Flynn’s story and to everyone who has already sent kind messages and words of support. He is very special to many people and is dealing with everything so incredibly well. It’s a long road ahead but we are staying positive and giving Flynn all the love and support we can. Any help at all would be hugely appreciated and will reduce the stress we are already having to face on a daily basis.

    Any money raised that is not used will be donated to children’s cancer charities.

    Thanks in advance for your kindness, together we can give Flynn his future.

    Updates

    10

    • Zara Picken7 days ago
      Zara Picken

      Zara Picken

      7 days ago

      And here’s Casey! Thanks to everyone for their kind contributions, without which we would have struggled to bring Casey along. We managed to get her a seat on the flights and a separate bedroom, allowing Flynn his own quiet space to recover. Flynn is very pleased to have his little sister around and we are all happy that we can stay together as a family to get through this.

      Update from the Page owner

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    • Zara Picken7 days ago
      Zara Picken

      Zara Picken

      7 days ago

      Well, we made it! It was a tough trip to Jacksonville (including missed flights and illnesses) but we’re here and that’s the important thing. The NHS/Proton Therapy Centre have arranged for us to stay in a lovely apartment which is close to the hospitals. The beach and zoo are also nearby, both of which Flynn loves. We have had meetings with Flynn’s doctors and treatment should start next week. Again, we are incredibly grateful to everyone who has helped us to exceed our target.

      Update from the Page owner

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    • Zara Picken1 month ago
      Zara Picken

      Zara Picken

      1 month ago

      Happily, this week has been positive. Flynn has had a short break from treatment to allow for an MRI scan which took place on Thursday, which we will hear results from in a couple of weeks. Flynn has had a lot more energy and has been eating more, which is a relief. He is undergoing daily injections into a cannula for 6 days, to strengthen his non-existent immune system. We now have a date (Friday 5th April) on which we will be setting off for Jacksonville, if all goes according to plan. Wish us luck! Zara, Alex, Flynn and Casey xxx

      Update from the Page owner

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    1 month ago

    Zara Picken started crowdfunding

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    Page last updated on: 4/12/2019 23.31

    Supporters

    279

    • Anonymous

      Anonymous

      Apr 9, 2019

      We saw your beautiful Freedom parakeet print at the transport museum this weekend. So sorry to hear of what your son and family are going through. Wishing you all the best for the treatment and trip.

    • Hayley Radford

      Hayley Radford

      Apr 8, 2019

      Hi Zara I came across your amazing Illustrations and then read all about Flynn. I know every little helps so am sending all my best from one mummy to another x

    • Clare

      Clare

      Apr 1, 2019

      £5.00

    • Anonymous

      Anonymous

      Mar 30, 2019

    • Anonymous

      Anonymous

      Mar 30, 2019

      Thinking of you all, hope you have a good journey next week and that everything goes well for you why you're there with little Flynn.

    • Melanie Edwards

      Melanie Edwards

      Mar 27, 2019

      £10.00

    • Nicky Morris of Luxe Hairdressing

      Nicky Morris of Luxe Hairdressing

      Mar 27, 2019

      £26.00

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    About Crowdfunding
    About the fundraiser
    Zara Picken

    Zara Picken

    Lincoln, UK

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