£81,754raised of £200,000 target by 1482 supporters

Weʼre raising £200,000 to fund #SurvivalSurgery4Sarah. We've raised over £53,000 offline so our total raised is over £135,000!

Rochford, Essex, United Kingdom

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Sarah's story Life is precious. I love mine, and am determined to make the most of it – but I need your help. My name is Sarah Gearing, I am 40 years old and I am in need of life-saving spinal surgery which is unavailable in the UK. My only options for this surgery are in the USA or Spain. The great news is I have been accepted as a candidate for surgery by the neurosurgeon in Spain, and due to the severity of my case my surgery has been scheduled for 9 November. The less great news is that this leaves me just 6 weeks to raise the £130,000 needed to pay for my surgery and post-operative care. Without this crucial life-saving surgery it is unlikely I will still be here by Christmas.

I have a rare genetic condition called Ehlers Danlos Syndrome (EDS) which makes the collagen in the my body and connective tissues faulty (think of collagen as the glue that holds you together). My form of EDS means I have gastric and digestion problems, frequent dislocations of joints and vertebrae, constant pain and seizures which leave me feeling confused and disoriented. Right now my brain is herniating (dropping) out of my skull, crushing my brainstem and spinal cord. The surgery I need involves a total neck fusion and procedures to put my brain back where it belongs and permanently relieve the compression on my spinal cord. (For more information on EDS please see  here )

I have been a full time wheelchair user for the last 20 years but I haven’t let that stop me from leading an active, full life. I am a bubbly lady with a passion for living well and helping others. I love to be outdoors with my gorgeous Assistance Dog, Otto, who is always at my side. He is my hero, having saved me from danger many times by alerting me to seizures, comforting me when I am in pain and doing many practical things for me – he’s an expert at sock removal.

With your support, I can get my life back. Having this surgery will enable me to look forward to a future without constant pain and seizures, to be able to sit upright for longer in my wheelchair and spend time with family, friends and to be able to go on ‘normal’ dates with my amazing boyfriend David who currently spends so much time caring for me. I can’t wait to take Otto out for walks in the woods once again, and it is my ultimate dream to one day visit my nephews in Australia.

I already spend a lot of my time helping and encouraging other sufferers of EDS, and now it is I who needs help. Only last year I was fundraising to help my friend Mel get the surgery she needed (I will never forget my wheelchair abseil down the O2 building in London!). When I recover from my surgery I am determined to continue to help and be an advocate for others with EDS and to pursue voluntary work, and your support will help make this possible.

I know it is not my time yet. I am so blessed to have some amazing people in my life and I won't give up when I have so much to live for! Words cannot express my gratitude for your support, I thank God for you all.

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  • survivalsurgery4sarah 9 days ago


    9 days ago

    We're delighted to have hit our target of £130,000 the day before Sarah's lifesaving surgery on 9th November. She is in all of our thoughts and prayers. Sarah has just found out that, due to more extensive spinal deterioration than expected, she will now need a second procedure which will cost in the region of an additional £70,000 and therefore our target is now £200,000. Full details can be found on our facebook page https://www.facebook.com/SurvivalSurgery4Sarah/posts/133404583984758 Thank you for your continued support.

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  • survivalsurgery4sarah 22 days ago


    22 days ago

    Thanks to all the recent publicity and the many fundraising events that have been taking place we are delighted to confirm that we have passed the threshold where we have raised enough to pay for the surgery itself. Right now we have raised over £96,000 and we are pushing hard to try to raise the remaining £34,000 to secure Sarah's recovery, post-operative care and rehabilitation. Thank you all for supporting #survivalsurgery4sarah!

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2 months ago

survivalsurgery4sarah started crowdfunding

Leave a message of support



  • Ella Cooper

    Ella Cooper

    Nov 16, 2017


  • charmaine slade

    charmaine slade

    Nov 16, 2017

    God bless you. I'm recently diagnosed with EDS as is my daughter. There but for the grace of God go I. I pray that you will get the surgery in good time.


  • Rachel Isle

    Rachel Isle

    Nov 16, 2017

    Hope you get what you need - good luck - best wishes a fellow zebra 🦓 xx

  • George Sandhu

    George Sandhu

    Nov 16, 2017


  • Artisan Rochford

    Artisan Rochford

    Nov 15, 2017

    From the sales of original 'Rochford Lights' Christmas card sales, Artisan are proud to be able to transfer £50 to such a worthy lady. We wish you a speedy recovery Sarah, Love Gracie & Sallyann xx


  • Anonymous


    Nov 15, 2017

    Keep fighting Sarah, you don't know me but you know the lovely Tessa, it was her who directed me to the donation site, get well soon x


  • Jessica Popham

    Jessica Popham

    Nov 14, 2017

    Little bit of fundraising from work


About the fundraiser


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Rochford, Essex, United Kingdom

The Survival Surgery 4 Sarah Trust will deposit funds in a dedicated account, ensuring that all donations are used for Sarah's surgery, related costs and post operative care needs. Any surplus will go to www.annabelleschallenge.org the leading charity for Vascular EDS in the UK.

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