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Susan Reid raised £895 from 39 supporters.

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Closed 14/12/2016

447%
£895raised of £200 target by 39 supporters

    Weʼve raised £895 to Kabuki UK

    Location
    Fareham, United Kingdom
    Time left
    Funded on Wednesday, 14th December 2016

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    Crowdfunding is the new way to raise money for a personal cause on JustGiving.

    Story

    On November the 20th I will be running the Gosport half marathon for a charitable organisation very close to our family's hearts; Kabuki UK.
    Kabuki Syndrome is a very rare genetic condition that affects approximately 1 in 32,000 births world wide.
       My granddaughter Phoebe was diagnosed with Kabuki Syndrome shortly after her first birthday.
       People with Kabuki Syndrome have numerous conditions which includes congenital heart defects, hypertonia, feeding difficulties, cleft palate, speech and language delay, hearing problems, learning difficulties and kidney abnormalities to name just a few associated complications.
       Kabuki Syndrome is complicated and has been underdiagnosed due to the lack of awareness amongst the medical profession.
      I will be running the half marathon proudly wearing my green Kabuki T-shirt to raise awareness and any monies raised will be given directly to the Kabuki UK charity. These will go towards the charities support activities, helping fund equipment and resources to help people just like Pheobe.
      If you would like to know more about Kabuki Syndrome please go to www.kabukiuk.org.uk.
    Thank you 💚💚💚

    Updates

    2

    • Susan Reid

      Susan Reid

      3 months ago

      Susan Reid

      Good news everyone - I did it!!!! Completed the Gosport Half Marathon yesterday in very windy conditions. As you can see the total raised so far totally exceeds my expectations so a huge thank you to you all for your sponsorship and support. I still have money to come in from other sources but the final total should be about £1000:00. A great achievement in aid of Kabuki UK. Thank you all once again - Sue (a certified half marathon runner!!!)

      Update from the Page owner

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    • Susan Reid

      Susan Reid

      4 months ago

      Susan Reid

      Thank you all for your support. 13 Days to go before the half Marothon,training going to plan. Still time to donate to this worth while cause.

      Share this update to help us raise more

    4 months ago

    Susan Reid started crowdfunding

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    Supporters

    39

    • Dan Shilcock

      Dan Shilcock

      Nov 29, 2016

      £20.00

    • S BARRY

      S BARRY

      Nov 29, 2016

      Well done from everyone at Silver Lining.

      £138.00

    • Jade Gordon

      Jade Gordon

      Nov 26, 2016

      Well done Sue-bo you absolute legend! Fizz today to celebrate your amazing achievement! Love Jade and Matt xxx

      £10.00

    About the fundraiser
    Susan Reid

    Susan Reid

    Fareham, United Kingdom

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