447%
£895raised of £200 target by 39 supporters

Weʼre raising £200 to Kabuki UK

Location
Fareham, United Kingdom
Time left
41 days to go

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Crowdfunding is the new way to raise money for a personal cause on JustGiving.

Story

On November the 20th I will be running the Gosport half marathon for a charitable organisation very close to our family's hearts; Kabuki UK.
Kabuki Syndrome is a very rare genetic condition that affects approximately 1 in 32,000 births world wide.
   My granddaughter Phoebe was diagnosed with Kabuki Syndrome shortly after her first birthday.
   People with Kabuki Syndrome have numerous conditions which includes congenital heart defects, hypertonia, feeding difficulties, cleft palate, speech and language delay, hearing problems, learning difficulties and kidney abnormalities to name just a few associated complications.
   Kabuki Syndrome is complicated and has been underdiagnosed due to the lack of awareness amongst the medical profession.
  I will be running the half marathon proudly wearing my green Kabuki T-shirt to raise awareness and any monies raised will be given directly to the Kabuki UK charity. These will go towards the charities support activities, helping fund equipment and resources to help people just like Pheobe.
  If you would like to know more about Kabuki Syndrome please go to www.kabukiuk.org.uk.
Thank you 💚💚💚

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Updates

2

  • Susan Reid

    Susan Reid

    17 days ago

    Susan Reid

    Good news everyone - I did it!!!! Completed the Gosport Half Marathon yesterday in very windy conditions. As you can see the total raised so far totally exceeds my expectations so a huge thank you to you all for your sponsorship and support. I still have money to come in from other sources but the final total should be about £1000:00. A great achievement in aid of Kabuki UK. Thank you all once again - Sue (a certified half marathon runner!!!)

    Update from the Page owner

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  • Susan Reid

    Susan Reid

    a month ago

    Susan Reid

    Thank you all for your support. 13 Days to go before the half Marothon,training going to plan. Still time to donate to this worth while cause.

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2 months ago

Susan Reid started crowdfunding

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Supporters

39

  • Dan Shilcock

    Dan Shilcock

    Nov 29, 2016

    £20.00

  • S BARRY

    S BARRY

    Nov 29, 2016

    Well done from everyone at Silver Lining.

    £138.00

  • Jade Gordon

    Jade Gordon

    Nov 26, 2016

    Well done Sue-bo you absolute legend! Fizz today to celebrate your amazing achievement! Love Jade and Matt xxx

    £10.00

Susan Reid

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About the fundraiser
Susan Reid

Susan Reid

Fareham, United Kingdom

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