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£740raised of £500 target by 27 supporters

Weʼre raising £500 to Help us raise money for a sensory room for Harry who has a life limiting condition. Our amazing friend Jackie is doing a Skydive to help.

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Harry was born in 2008 with a rare chromosome deletion called 1p36 deletion syndrome. This means that a large part of Harrys chromosome 1 is missing, affecting his growth, speech, development, mobility and motor skills. If you would like to learn more regarding 1p36 Deletion Syndrome, please visit

To ensure future support for Harry we have set up a care fund. You can learn more about Harry and see how he has benefitted from people’s generosity at

Harry cannot speak or communicate with us much at the moment. He has a mental age of around 18 to 24 months and cannot play like other children as he doesn’t have the necessary motor skills. He loves cbeebies on the television and he also loves water and his special swing.

We would love to raise enough money to build a sensory room for Harry, so he can engage in other activities. A sensory room is a special room designed to develop a person’s senses, usually through special lighting, music, and objects. It can be used as therapy for children with limited communication skills. To give you an idea of what we mean please see

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  • Susan and Jeff Smith3 months ago
    Susan and Jeff Smith

    Susan and Jeff Smith

    3 months ago
    Update from the Page owner

    Thank you so so much to everyone who has donated to Jackie’s fundraising sky dive for Harry’s Sensory room.

    Share this update to help us raise more

3 months ago

Susan and Jeff Smith started crowdfunding

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Page last updated on: 7/20/2018 5:41 PM



  • Dave Jackson

    Dave Jackson

    Jul 20, 2018

    Sorry we are late. love to you all


  • Sue & mike (tenerife)

    Sue & mike (tenerife)

    Jun 28, 2018

    ThAnkyou sue & mike for donating, it’s really lovely of you, even though u live 1500 plus miles away in tenerife!It’s really appreciated x


  • Sian & Mart x

    Sian & Mart x

    Jun 26, 2018


  • Lisa & Ava xxx

    Lisa & Ava xxx

    Jun 25, 2018

    Hope all goes well xx


  • Katrina Petch

    Katrina Petch

    Jun 22, 2018


  • Louise Tabore

    Louise Tabore

    Jun 19, 2018

    Go mum . Xxx

  • Jenny Smith

    Jenny Smith

    Jun 19, 2018

    Thank you so much Jackie! Xx


Susan and Jeff Smith

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About the fundraiser
Susan and Jeff Smith

Susan and Jeff Smith

Meopham, UK

Hi. We are Harry’s Nan and Grandad and together with his other Grandparents we have set up a Future Care Fund for him. Harry will need 24 hour care for the rest of his life, so we are fundraising to make his life a little easier and to provide things that the NHS cannot.

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