Weʼre raising £500 to Help us raise money for a sensory room for Harry who has a life limiting condition. Our amazing friend Jackie is doing a Skydive to help.
- Meopham, UK
The page owner is responsible for the distribution of funds raised.
Harry was born in 2008 with a rare chromosome deletion called 1p36 deletion syndrome. This means that a large part of Harrys chromosome 1 is missing, affecting his growth, speech, development, mobility and motor skills. If you would like to learn more regarding 1p36 Deletion Syndrome, please visit www.rarechromo.org
To ensure future support for Harry we have set up a care fund. You can learn more about Harry and see how he has benefitted from people’s generosity at https://m.facebook.com/HelpHarry/
Harry cannot speak or communicate with us much at the moment. He has a mental age of around 18 to 24 months and cannot play like other children as he doesn’t have the necessary motor skills. He loves cbeebies on the television and he also loves water and his special swing.
We would love to raise enough money to build a sensory room for Harry, so he can engage in other activities. A sensory room is a special room designed to develop a person’s senses, usually through special lighting, music, and objects. It can be used as therapy for children with limited communication skills. To give you an idea of what we mean please see www.multisensoryenvironments.com
Share this story
- 3 months ago
Susan and Jeff Smith3 months ago
Thank you so so much to everyone who has donated to Jackie’s fundraising sky dive for Harry’s Sensory room.
Share this update to help us raise more
Susan and Jeff Smith started crowdfunding
Leave a message of support
Jul 20, 2018
Sorry we are late. love to you all
Sue & mike (tenerife)
Jun 28, 2018
ThAnkyou sue & mike for donating, it’s really lovely of you, even though u live 1500 plus miles away in tenerife!It’s really appreciated x
Sian & Mart x
Jun 26, 2018
Lisa & Ava xxx
Jun 25, 2018
Hope all goes well xx
Jun 22, 2018
Jun 19, 2018
Go mum . Xxx
Jun 19, 2018
Thank you so much Jackie! Xx
Become a supporter
Help Susan and Jeff Smith raise more
About the fundraiser
Susan and Jeff Smith
Hi. We are Harry’s Nan and Grandad and together with his other Grandparents we have set up a Future Care Fund for him. Harry will need 24 hour care for the rest of his life, so we are fundraising to make his life a little easier and to provide things that the NHS cannot.
* JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.