What we are do?
We shall be organising a number of local and online fundraising and awareness events.

Why are we doing it?

For Caroline.
Caroline (36)has EDS Type3 & chiari malformation.She is a wife to Neil and mum of 3 young children, she struggles daily with her conditions from musculoskeletal system, daily dislocation of multiple joints, autonomic system, chronic pain and fatigue. Living with this deteriorating condition and a lack of specialist medical treatment in Ireland Caroline is travelling to a private specialists Clinic in London approximately once a month for help with her condition and further tests. During the fundraising process we are looking to help raise awareness of this condition and about living/management with chronic conditions and pain.

Please give every penny/cent counts.

What is EDS?
Ehlers-Danlos syndrome (EDS) is the name for a group of rare progressive conditions that affect the connective tissue/collagen of the body. Connective tissues support the skin, tendons, ligaments, blood vessels, internal organs and bones. Thus, a person with EDS can have varying symptoms from frequent dislocations to mitral valve and organ prolapse. There is no cure. Only management.

What is Chiari malformation?
Chiari malformation is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward.
Headaches, often severe, are the classic symptom of Chiari malformation. They generally occur after sudden coughing, sneezing or straining. Neck pain,
Unsteady gait (problems with balance)
Poor hand coordination (fine motor skills)
Numbness and tingling of the hands and feet
Dizziness, Vision problems, hoarseness
Related to spinal cord impairment
Abnormal breathing, such as central sleep apnea.