Weʼre raising £2,000 to 2 seizure monitors &2 anti-suffoction pillows
- Poole, UK
The page owner is responsible for the distribution of funds raised.
Hi those of you that know us know we dont ask for help. We are usually the ones giving help! We usually plod along being stubborn, not asking for help when we probably should!
So here goes!!
heres our story david & i have 5 children 4 girls 1 boy. We love our children with all our hearts.
Two of our girls have epilepsy.
Taiya is 5 and she has suffered with seizures since she was 8 months old. She spent 70% of her 1st 2 years in hospital and we nearly lost her 4 times. Her seizure types are tonic clonic, these are the type of seizure people imagine when they hear epilepsy. she has a genetic form of epilepsy, it is the scn1a gene. She has multiple seizures mostly at night.
Cadence is 10 and she has suffered with seizures since she was young. Unfortunately hers went unnoticed for years as they are what's known as absence vacancies. She can seizure anytime &go unnoticed or written off as daydreaming.
They are under the same consultant and he wants them to both have seizure monitors and anti-suffocation pillows due to the risk of sudep.
Sudep stands for Sudden Unexpected Death in Epilepsy.
This is obviously a major worry for us. So much so that my husband & i dont sleep properly as we are on edge in case one of thd girls have a seizure. We 've mastered the art of coping with little sleep.
Seizure monitors don't come cheap.
we have gone for the cheapest options given to us against the consultants wishes as we need 2.
We 've had lots of bad luck recently for those that don't know us our son who's now 9months old has been extremely poorly spending a lot of time in hospital himself. Hospital stays are expensive specially when you don't drive! We used what little savings we had over Xmas 2017 when he was in hospital which means we have nothing again& we really need these monitors.
We have some fundraising events lined up to help the fund. Thank you for taking the time to read this.
Amelia, Cadence, Taiya, Aurora & Harley
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- 2 months ago
sabina foster2 months ago
hey everyone thank you for all the support please do share the page sharing helps us get donations we ve had £121 in offline donations from the girls school summer fair where we did a tombola, lucky dip & a lucky squares which is amazing thank you every single one of you xx
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sabina foster started crowdfunding
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Jul 27, 2018
A little more to help you on your way :) ❤️
Jul 2, 2018
Jul 1, 2018
Jun 29, 2018
lots of love to you all 💜💜💜
Jun 6, 2018
To help you on your way xx
Jun 6, 2018
I know it's not much but as you know we personally know how much you need these monitors and pillows for the girls xxx
May 29, 2018
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About the fundraiser
Hi I am sabina mum to 5 beautiful children I started this appeal so that me &my hubby can sleep properly (without 1of us staying awake) with peace of mind knowing our girls are being monitored
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