Hi those of you that know us know we dont ask for help. We are usually the ones giving help! We usually plod along being stubborn, not asking for help when we probably should!

So here goes!!
heres our story david & i have 5 children 4 girls 1 boy. We love our children with all our hearts.

Two of our girls have epilepsy.

Taiya is 5 and she has suffered with seizures since she was 8 months old. She spent 70% of her 1st 2 years in hospital and we nearly lost her 4 times. Her seizure types are tonic clonic, these are the type of seizure people imagine when they hear epilepsy. she has a genetic form of epilepsy, it is the scn1a gene. She has multiple seizures mostly at night.

Cadence is 10 and she has suffered with seizures since she was young. Unfortunately hers went unnoticed for years as they are what's known as absence vacancies. She can seizure anytime &go unnoticed or written off as daydreaming.

They are under the same consultant and he wants them to both have seizure monitors and anti-suffocation pillows due to the risk of sudep.

Sudep stands for Sudden Unexpected Death in Epilepsy. 

This is obviously a major worry for us. So much so that my husband & i dont sleep properly as we are on edge in case one of thd girls have a seizure. We 've mastered the art of coping with little sleep.

Seizure monitors don't come cheap.
we have gone for the cheapest options given to us against the consultants wishes as we need 2.

We 've had lots of bad luck recently for those that don't know us our son who's now 9months old has been extremely poorly spending a lot of time in hospital himself. Hospital stays are expensive specially when you don't drive! We used what little savings we had over Xmas 2017 when he was in hospital which means we have nothing again& we really need these monitors.

We have some fundraising events lined up to help the fund. Thank you for taking the time to read this. 

love
Sabina, David
Amelia, Cadence, Taiya, Aurora & Harley
xxx