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Mat and Tania are doing a ‘firewalk’, walking barefoot across hot burning embers and coals.
We are doing this crazy challenge to raise money to support patients with PC who feel like they walk on fire every day.
Pachyonychia Congenita (PC), is an ultra rare and ultra painful genetic condition.
PC makes walking or even standing extremely painful and most patients experience pain every single day of their lives.
There are less than 1300 people in the world genetically confirmed to have PC and only 5 in Wales!
Currently, there is NO cure for PC and little effective treatments.
The PC Project Charity is a very small charity working hard to find treatments to stop the pain.
All funds raised from the Firewalk will go directly to them.
The Firewalk will take place on Saturday April 18th, at Mumbles Cricket Club, Swansea. It will be a lively event with a BBQ and celebrations afterwards so please come out and support us on the day as well!!