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Gemma and Nick Cowles raised £28,175 from 379 supporters

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Closed 31/12/2022

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£28,175
raised of £25,000 target by 379 supporters

    Weʼve raised £28,175 to fund a specialised wet room and key equipment for Ariela and for the FamilieSCN2A and Francis House charities.

    Funded on Saturday, 31st December 2022

    Don't have time to donate right now?

    Story

    Welcome to the world - Ariela Rollo - 23.07.2019

    Our little niece Ariela Rollo was born in July 2019, my sister's first child and a beautiful little girl who captured our hearts from the moment she was born. A few days later Ariela started to suffer from regular seizures and spent many months of her first year in hospital as doctors cared for her and assessed her condition. Ariela sadly has little brain activity and was eventually diagnosed with Otahara syndrome, caused by a very rare genetic condition (SCN2A). The condition will sadly limit her life and require 24/7 care. Ariela will never be able talk, walk, or hold the weight of her head, however she is just as beautiful in our eyes as any other little girl and is loved and cared by all those around her.

    It is a little miracle she is now 2 and a half and proves to us all that every single day is a day we should all live life to the full.

    All the love in the world...

    Although she will have a very different life to most little girls she has the most dedicated and loving parents and family support network in the world - everyone makes her life special, comfortable and shows her unconditional love - she is the family's little Princess.

    As Ariela grows....

    As Ariela grows her needs change and the care and support also changes. The NHS have been amazing and provide night care for Ariela 5 nights a week and a lot of the specialised chairs and equipment she needs for life at home. What she really needs now is a specialised wet room on the ground floor of the house to ensure she can be washed comfortably and safely as she grows. She would also benefit from some specialised play equipment and physio sessions to ease the extreme stiffness she suffers with in her joints because of her dystonia.

    Team Ariela - Run for Rollo - Manchester Marathon 2022

    So we thought....

    why not sign up for a marathon ...... !!!!!!

    to raise monies to help fund the works needed at home for Ariela and also support two important charities - one that works to improve the lives of those affected by SCN2A related disorders through research, family support and patient advocacy The FamiliesSCN2A and Francis House who provide amazing respite and support for families with children with serious health conditions.

    We have set a target of £25,000 but have an ambition to raise much much more with funds to be split across Ariela's projects and The FamiliesSCN2A and Francis House charities.

    So we have pulled in support of family and friends as well as our colleagues at St Ann's Primary School and Zeus Capital and assembled a team of 25+ to take part in the Manchester Marathon on 3rd April 2022.

    6 weeks to Race Day......

    Thank you to everyone who has signed up to join us and is putting themselves through the training over the cold winter - we couldn't do this without you all.

    Let's raise as much as possible for these amazing causes

    See you at the finish line Ariela !!

    Updates

    10

    • Gemma and Nick Cowles2 years ago
      Gemma and Nick Cowles

      Gemma and Nick Cowles

      2 years ago
      Update from the Page owner

      A massive thank you to everyone - we are so so grateful for every single donation and the amazing support we have had on this journey. These funds will go to such amazing causes - thank you

      Share this update to help us raise more

    • Gemma and Nick Cowles2 years ago
      Gemma and Nick Cowles

      Gemma and Nick Cowles

      2 years ago

      Well it's just 1 day to go until we line up on the start line.... can't believe how quickly it has come round and cannot believe the incredible support we have had for this - we are overwhelmed and truly blessed so thank you all x Had this message this morning ....... "Ariela is very excited about how the fundraising is going and is looking forward to the race !!! "

      Update from the Page owner

      Share this update to help us raise more

    • Gemma and Nick Cowles2 years ago
      Gemma and Nick Cowles

      Gemma and Nick Cowles

      2 years ago
      Update from the Page owner

      90%!!!!!!!!!!!!!! amazing just amazing

      Share this update to help us raise more

    2 years ago

    Gemma and Nick Cowles started crowdfunding

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    Page last updated on: 6/9/2022 17.43

    Supporters

    379

    • Susan Nicol & family

      Susan Nicol & family

      Jun 9, 2022

      Very late to this but well done on your achievement! What a difference you are going to make x

      £20.00

    • David Howel

      David Howel

      Apr 19, 2022

      £50.00

    • Gillian & tim forward

      Gillian & tim forward

      Apr 17, 2022

      Well done, what an achievement to have reached the target you set - what a difference you will make for this lovely family and others. x

      £20.00

    • Chloe Caesar

      Chloe Caesar

      Apr 14, 2022

      Sorry this is so late! Well done xxx

      £20.00

    • Nasim

      Nasim

      Apr 13, 2022

      Well done, such a great cause.

      £50.00

    • Tommy and Carol en Escoce.

      Tommy and Carol en Escoce.

      Apr 12, 2022

      C'mon You Cowles. XxX

      £40.00

    • Kerri McGuire

      Kerri McGuire

      Apr 11, 2022

      Well done!

      £50.00

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    About Crowdfunding
    About the fundraiser
    Gemma and Nick Cowles

    Gemma and Nick Cowles

    Auntie and Uncle to Ariela Rollo

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