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Closed 07/06/2021

205%
£4,109
raised of £2,000 target by 218 supporters

    Weʼve raised £4,109 to The Family of Amelia Davies 8, who on the 25th January lost her battle to Neuroblastoma only four Months after being diagnosed.

    Darlington, County Durham
    Funded on Monday, 7th June 2021

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Four months After being diagnosed Amelia Davies 8 lost her hard fought battle to Neuroblastoma.

    Throughout 2020, many, including ourselves have been battling with Mental health. What gets us through our inner battles is fitness and running. And we do most of it as a family. This year we decided to do a family challenge, and that challenge is the David Goggins' 4x4x48 challenge. This means that at midnight on the 5th March until midnight the 7th March, we will be doing 4 Miles every 4 hours for 48 hours.

    We thought about doing this for a charity, but as there are so many worthy causes, we just could not decide on which one was more deserving. However on the 27th January we received a letter from Polam Hall School informing us that a little girl called Amelia Davies had passed away. The news sent shock waves throughout the schooling community, not to mention the children including our 9 year old, who on many occasions shared a classroom and lunch table with Amelia.

    Amelia's favourite holiday destination have always been Skegness. Her family are planning a trip there on her birthday to go and scatter her ashes. The money raised will help fund this trip as well as making sure her family can come from far and wide to give Amelia the best send off she deserves. Also we hope to raise money in order for us to put up a Buddy Bench at her school, in her name. Please Read Amelia's story towards the bottom of this page (Unedited)

    Please help us in our mission for Amelia -we will be doing updates on our training. And on the days of the event we will Start and Finish each run on Instagram and Facebook live. Please follow our progress on @h.b2812 and @jeaninebekker and @mckaylabekker.

    Awareness for Neuroblastoma.

    Team Bekker - Hendrik. - Jeanine - Mckayla - Alexis & Coenie Dog our Sprocker Spaniel.

    Amelia’s story

    From Aug/Sept 2020 Amelia started suffering badly with stomach pains and struggled going to the toilet, the GP booked her in for an ultrasound at Darlington Hospital. The day after the ultrasound we were called back into to Darlington for further testing, this is when we found out Amelia had a tumour near her left kidney roughly around 7 to 8cm. We were then moved on the same day to the RVI in Newcastle for further investigation, Amelia then had to go through more ultrasounds, CT scans, MIBG scans and a biopsy. The results of these had shown that the tumour was actually 7.3cm x 6.9cm x 11cm and the biopsy shown that she had some Neuroblastoma cells (cancerous cells) and Ganglioma cells (large harmless cells) were in the tumour. She was then diagnosed with Gangliomaneuroblastoma and was booked in to have the tumour removed on the 16th November.

    The consultant decided to do a bone marrow test to make sure the Neuroblastoma cells hadn’t spread elsewhere then on the 30th October 2020 Amelia was diagnosed with a Neuroblastoma as the cells were also in the bone marrow. Fewer than 100 children are diagnosed each year with Neuroblastoma’s, these develop from the cells left behind from a baby’s development in the womb and in more common in children ages 5 or under. On the 4th November her chemotherapy treatment started, every 10days for 8 sessions this bulk of Chemotherapy was called COJOC it was intense and very strong treatment. This was a huge whirlwind for Amelia and family, we quickly had to learn all the side effects of each type of chemotherapy she received and she had countless medication we had to give her daily at home, thankfully we had huge support at home and from the hospital.

    Once treatment had started Amelia got a lot of side effect very quickly, sense of smell changed dramatically, taste buds changed and she was extremely sick from treatment this made it rather difficult to feed her as she also lost her appetite. It was trial and error with anti-sickness medication to see what worked for her, after her second course of treatment her hair was falling out in clumps this really dis-stressed Amelia. Between each treatment she had to get an injection daily called GSCF this was to boost her white blood cells to make sure if could fight off infections, this again was a huge challenge for Amelia as she hated injections but thankfully the community team at Darlington were fantastic with her. Although the side effects from treatment were awful Amelia was fantastic throughout treatment and was still her happy self even on the bad days.

    At the start of treatment Amelia weighted 31.9kg this dropped weekly and she was then fitted with an NG tube (feeding tube) when she dropped to 28.5kg. She started on 3days of 20hrs feed at 20ml per hour this was increased each day to see what she could manage. We got her to 40ml per hour and dropped to 15hours per day at home, this again was a huge learning curve for us all. At first it was all going well the feeds had given her an appetite again and she was eating and her weight was slowly going back up, she got up to over 30kg. As treatment continued, she started struggling with her feeds and getting up through the night being sick, losing her appetite again and we slowly watched her get thinner and thinner. The dietitian worked with us to amend the feeds and start off again slowly to make sure she was getting calories.

    Half way through treatment she had another bone marrow and ultrasound to check if treatment was working, and thankfully it was, her tumour had shrunk and the Neuroblastoma cells in her bone marrow were decreasing this was fantastic news for us all.

    Whilst at home we had to monitor Amelia’s temperature constantly if it dropped to low or went to high, we had to ring the hospital and 9 times out of 10 had to go up to A&E at the RVI and then admitted back onto Ward 4 for a course of antibiotics this happened very frequently with Amelia and we spent a large amount of time at hospital. On the 13th Jan 2021 it was the start of her last session of COJOC chemotherapy, after this session she had appointments for MRI scan, MIBG scan and another bone marrow test, on Wednesday 20th Jan 2021 we had an appointment with the consultant who told us the tumour had shrank again to 5.2cm x 4.9cm x 10cm They had also found a single cell attached to her left hip bone which wasn’t clear to see on 1st MIBG scan but again that was shrinking to and the bone marrow was clear of Neuroblastoma cells. Amelia was then admitted on the 21st Jan with a high temperature, on the 25th January she was booked in to start a stem cell harvest before her operation on 8th February, they couldn’t go ahead with the harvest as her white blood count was still too low, but they were happy for her to be discharged home after a 4hour potassium infusion 2hours into the infusion Amelia started to have a reaction although all the staff if everything they could for Amelia she sadly passed away on 25th January 2021.

    Throughout treatment Amelia also had to have countless bloody transfusion to keep her red blood cells and platelets at a healthy level. The last few months have been so difficult for us all including Amelia we couldn’t be anymore grateful for the fantastic staff and care Amelia received at the RVI and the support we received and are still receiving now through this difficult time.

    We would like to raise more awareness of Neuroblastoma, with Amelia only having stomach pains this is a natural thing that kids often complain about and although it will more than likely be nothing serious it is good to know if they pain continues and other signs you could look out for such as swelling in the area. Neuroblastoma UK is a charity ran by health professional and parents or close family members who have been in similar situations. Amelia's consultant works with the charity to help with research at Newcastle University. There website gives you a list of systems too look out for and different areas in the body where Neuroblastoma’s will occur. Also, stories of families also that have survived through their journey.

    Updates

    27

    • Hendrik BEKKER2 months ago
      Hendrik BEKKER

      Hendrik BEKKER

      2 months ago

      Update from the Page owner

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    • Hendrik BEKKER2 months ago
      Hendrik BEKKER

      Hendrik BEKKER

      2 months ago

      Update from the Page owner

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    • Hendrik BEKKER2 months ago
      Hendrik BEKKER

      Hendrik BEKKER

      2 months ago

      Update from the Page owner

      Share this update to help us raise more

    3 months ago

    Hendrik BEKKER started crowdfunding

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    Page last updated on: 3/31/2021 17.21

    Supporters

    218

    • Learning and Work Institute

      Learning and Work Institute

      Mar 31, 2021

      £50.00

    • Laura Shoulder

      Laura Shoulder

      Mar 19, 2021

      £10.00

    • Anonymous

      Anonymous

      Mar 19, 2021

      A great support To Amelia’s family and the wider Polam community thank you.

      £10.00

    • Jamie Gallagher

      Jamie Gallagher

      Mar 12, 2021

      £10.00

    • Mr & Mrs Alderson

      Mr & Mrs Alderson

      Mar 10, 2021

      £10.00

    • Ste chambers

      Ste chambers

      Mar 10, 2021

      £44.00

    • Lako

      Lako

      Mar 10, 2021

      £15.00

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    About Crowdfunding
    About the fundraiser
    Hendrik BEKKER

    Hendrik BEKKER

    Darlington, County Durham

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