Weʼre raising £4,000 to Jaxons Chance is raising money to pay for essential therapy and equipment for Jaxon. This will really help Jaxon to reach his full potential
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Jaxon was born at 24 weeks in December 2015. Shortly after he was born Jaxon sustained a grade 4 (the worst possible) bleed to his brain. Drs advised that Jaxon was so poorly and was deteriorating rapidly that the best thing to do would be for them to stop support and let him pass away in our arms and not an incubator. By an absolute miracle, Jaxon started improving while we were waiting for him to be baptised. For us, nothing was ever going to be worse than that night. At 5 weeks old Jaxon was diagnosed with Hydrocephalus (water on the brain) this was caused by the blood clot blocking the flow of the csf around his brain. Treatment for the hydrocephalus was delayed for weeks due to Jaxons ventilation and breathing requirements being so unpredictable. Jaxon had a VP shunt inserted in his brain just after his due date to creat a new pathway for the fluid. Unfortunately after just over a week this shunt became severely infected and Jaxon underwent two operations, one to remove the shunt and one to insert a new one, with a 2 week course of intervenous antibiotics inbetween. For the next 6 months we had a normal quiet family life. Jaxon was weaned off of home oxygen and life felt back on track. It wasn't to last, in the October Jaxon was very poorly and despite 3 visits to A&E we kept being told he had a viral infection. Jaxon was admitted for dehydration but had a cardiac arrest and was rushed to intensive care. An emergency CT scan was performed and neurosurgeons advised his shunt was blocked. He was rushed to theatre. Jaxon spent time in intensive care and high dependency and had an external drain inserted to remove the fluid that had been building up on his brain. Two weeks later Jaxon had his 5th neuro op to insert his new Shunt. Jaxon has had multipul admissions, including high dependency, since for either breathing difficulties or seizures. Despite all of this Jaxon is a happy, active and cheeky two year old. He has been diagnosed with spastic diplegic cerebral palsy, hydrocephalus, nystagmus, epilepsy and global developmental delay. Cognitively he is performing at less than a 1 year old but we see progress constantly. He is classed as none verbal however recently this is improving and he is able to say a few words in context. He is unable to sit unaided but can crawl faster than anyone I've ever seen! This has however been his mode of transport for nearly a year and we are becoming increasingly aware that his leg muscles are always bent. This is likely to have a detrimental impact on his ability to stand or even walk and is likely to increase his chances of needing botox to reduce the tightness in his legs. This got mummy researching!! We have found private therapy in Oxfordshire that use a 'spiders web' equipment to attach the children too which enables them to stand with their muscles in the correct position while being supported. This increases strength, normalises the muscles, improves balance, coordination, core stability and confidence. Sounds amazing right?? But it comes at a cost and that is why we have set up this page. We intend to use every penny to fund the therapy, transport and any equipment the physios recommend. We don't have any unrealistic expectations for Jaxon, whatever is mobility or cognitive ability we will deal with it together but what we do want is to be able to turn around when he's older and say we did everything we could and didn't just wait and see what happens! Thank you for reading and thank you for any support
xxxxx Team Davis xxxxx
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- 1 year ago
Aimee Davis1 year ago
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Jul 25, 2018
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Jun 30, 2018
Love seeing the photos of you and Jaxon’s progress xx keep going Aimee you are awesome 👏
Jun 7, 2018
Stay strong keep working hard, stay determined and strong but make time for yourselves . Be proud you are amazing!
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