William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.

Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.

Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.

We will be TEAM DWAD for the month of November - our aim is to complete 535.4 hours of activity logged onto Strava..... William has duplication of exons 53-54 within his Dystropin gene - this caused Duchenne....

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