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On 20th April 2018, our world changed forever, when we learned Georgia had DIPG - an aggressive and inoperable brain stem tumour. There is currently no cure for this dreadful disease, and the standard treatment is radiotherapy simply to extend the child's life. You can read more about DIPG here
Over the last 8 weeks, Georgia has undergone 4 MRI's, a brain biopsy and 6 weeks of radiotherapy. At this time, this is all that conventional medicine can do for us.
However, there ARE therapies out there. They're experimental in nature, but we've researched them endlessly and identified the ones that show promise. We feel very strongly that we owe it to our little girl to try them. Her quality of life is forefront of our mind, so we won't put her through endless treatments if she is clearly deteriorating. But right now, she's improving, and has such a will to live and a love of life, that we are determined to try and save her. Without trying these treatments, she has just months to live.
The first, and perhaps most costly procedure, is she is being fitted with a Convection Enhanced Delivery (CED) system. This is a relatively new technique which allows cancer fighting drugs to pass across the 'Blood Brain Barrier', the impenetrable wall that makes treating brain stem cancer so difficult. You can read more about CED here This procedure is not available on the NHS, and is estimated to cost around £60,000.
Once fitted, Georgia can receive transfusions of the chemotherapy drugs that show some promise, as well as using immunotherapy treatments to fight the cancer. These infusions will involve travelling every few weeks to Europe, and are estimated to cost between £6,000 and £20,000 per infusion.
Our total estimated costs are in the region of £200,000 to £300,000. We are draining our savings to fund as much as we can, but still have a shortfall. People have been so kind and generous already but if you can spare anything at all to help Georgia, we would be so incredibly grateful. If you have any questions at all, please feel free to contact us.
Thank you for taking the time to read this - With Love, Gary, Ruth, Georgia and Finley
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Aug 21, 2018
Beef Olive - Donations from Beef Olive customer’s, thank you.Sending love & strength to Georgia & her family x
Aug 20, 2018
Aug 19, 2018
A donation from Whitchurch Combined School PTA.
Aug 19, 2018
With love and pray.
Aug 18, 2018
Aug 16, 2018
Aylesbury Tuck - Thank you to Aylesbury Tuck for having a collection bucket & all their customers who donated. Many thanks to the staff also for kindly donating their tips. Much appreciated xxx
Aug 16, 2018
Love and support to you. x
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