From Carl's wife's Facebook page:

In January, Carl's neurologist told him he was now in respiratory failure and gave him a prognosis of around one year.
6 months into those 12 and Carl faces challenges I didn't know it was possible for a person to overcome.
He is now completely paralysed. He has no speech at all. He is nil by mouth - he hasn't eaten or drank a thing since last year and is tube fed shakes and medication directly into his stomach. He struggles with breathing and choking constantly.

Carl's respiratory nurse visited the other day and told us that Carl's breathing now is the same as a person lying down and having countless breeze blocks on their chest. Carl's machine should breathe on average for him ten times an hour. It is currently doing it 50 times an hour throughout the night. That's 50 times every hour his body wakes him up gasping for breath. That's during the times he can tolerate the machine.
All of this happens whilst he is totally paralysed from the neck down.
The nurse was in shock he can even get out of bed during the day. The stress and lack of sleep his body gets would exhaust anybody, never mind a paralysed man who is in constant agony from all of the muscle wastage in his body.

But he does get out of bed. Every day. Because this is Carl's fight. He gets up, and he asks to see me. He wants to see Arlo play on the floor in front of him, even though he's never been able been able to even hold him. He holds his tears of anger, frustration and desperate sadness back and replaces them with sheer pride and love.
He asks to see the dog, and he's told me if he could ever move again one of the first things he would do would be to walk the dog, and stroke him for hours.

This is Carl's fight.
When you fight a battle with so much determination, dignity, strength and pride, you never, ever lose.

Carl is a warrior and we are proud of him every day 💪🏻💙

This is Motor Neurone Disease. No cause, no cure.