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£225raised of £4,000 target by 14 supporters

Weʼre raising £4,000 to help fund mechanical arms for Leon..Team Leon will also be donating to joining jack Duchenne uk registered charities.

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Story

Team members are:

Dawn Gardiner, Fiona Pursell, Debbie Mountford, Caroline Medhurst, Charlotte Rockey, Louise Gardiner, Simon Tallis, Emma Gardiner, Daniel Barcroft, James Gardiner, Lorel Wallis, Jackie Wilson, Ian Mountford, Dianne Gore, Robson Chater, Kerrie Gould, Ione Church, Rachel Butt, John Butt, Abbie Jeffs, Mike Nash, Donna Warner, Lisa Gower, Domonic Stacey, Sally Robbins, Gale Shaw, Amanda Glanfield, Sara Robotham, Annie Popham, Vicky Rogers, Mark Smith, Kirstin Smart, Kim Morgan, Cassie Hedges, Ashleigh Howley, Paul Gardiner, Fiona Haynes.

2014 Leon took his last independent steps. Duchenne muscular dystrophy robs children like Leon of the basic skills we teach our children. Walking, standing, brushing teeth, hair, lifting a cup without spilling, feeding themselves. The list goes on. Barely able to hug those close to him now, everyday life is a challenge but for the wonderful people who do so much to physically support him. Watching Duchenne gradually weaken his entire body, his hand help up in class by his T.A when Leon has something to contribute to the lesson. I realised that before long even answering his mobile is difficult. This weekend I called his phone on connecting he called out "hold on I've got to get the phone to my ear". When Duchenne did you steal that ability away from him. We cannot stop this conditions progress and it is 100% fatal. Even though he is aware of his fate he does not give up hope. He has agreed that he will undergo tendon release surgery and spinal rods to be fitted in his back in the hope that we can relieve pressure on his failing respitory system which he hopes will give scientist time to find a cure in his life time. He acknowledged that if this doesn't happen he wants them to keep working for other's. A smile on his face, a giggle that's infectious, a teenage boy with the normal teenage antics and frame of mind coupled with extreme positivity that at times astounds myself and his family and friends alike. A brave much loved little man who was once so tiny he was my little dot. Help us raise the funds for equipment that will give him some independence to scratch his own head. Tweek his ear. Put his headphones on. Take a phone call and pick up a cup to raise to his mouth without having to drop his head down to drink. As always Team Leon (Leons chance) makes donations to charity, this year we will be donating to (Joining Jack) Duchenne UK.

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Updates

2

  • Team Leon 4 days ago
    Team Leon

    Team Leon

    4 days ago

    TARGET UPDATE Unfortunately I can not add the donations received off line to our just giving account total as there is no facility to do so when crowdfunding. I would like you all to know we have a confirmed £1,195 that's an amazing 30% including the on line donations so far. I am aware that there are a lot of you collecting your donations and that we have not spoken since July, so please if you have a running total that I can update the page with that would be great.

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  • Team Leon 1 month ago
    Team Leon

    Team Leon

    1 month ago

    Thank you so much, the donations have started to come in. We have a confirmed date 6th October 2018 at churston manor. Brixham. Looking forward to seeing you all there. We now have sponsorship forms ready too and I will hand these out to those I see. If you would like them emailed please let me know. Great start thank you x

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1 month ago

Team Leon started crowdfunding

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Page last updated on: 8/15/2018 1:46 PM

Supporters

14

  • Kath Mainon

    Kath Mainon

    Aug 5, 2018

    Love and best wishes to Leon, Ian and the team.

    £20.00

  • Annie Rundle

    Annie Rundle

    Jul 25, 2018

    Good luck everyone! Sorry it's not much! X

  • Nanny

    Nanny

    Jul 21, 2018

    For a very special person x

    £20.00

  • Jean

    Jean

    Jul 20, 2018

    £10.00

  • Kim Rickell

    Kim Rickell

    Jul 19, 2018

    With love, Kim

    £20.00

  • TW

    TW

    Jul 19, 2018

    £20.00

  • Louie

    Louie

    Jul 19, 2018

    Good luck girls.

    £10.00

Team Leon

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About the fundraiser
Team Leon

Team Leon

Devon uk

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