As veterans of the Borough of Bury Veterans Association we would like to raise money for Teds journey by entering a team into the Tatton Park 10km on 10th Feb 2018.

Please give generously for Teds Journey

Ted was diagnosed with a brain tumour in September 2016 after months of mis-diagnosis. He was kept in RMCH where he suffered from bad hydrocephalus. Numerous operations later to fit a shunt, make a hole through the ventricles inside the brain, remove the shunt, fit an EVD, replace the shunt, change the valve twice he was ready to start tackling the tumour itself. (13 operations later) He started chemotherapy in December 2016 but after 3 months an MRI showed a big growth in the size of it.

He had an extremely dangerous but lifesaving operation in which they managed to remove 30% of the tumour. Two weeks later a baseline scan was done to check the size of the tumour before he started his new chemotherapy (2 chemos that work hand in hand) .

Unfortunately the scan showed that everything that had been removed had grown back……..the decision was made to try again to remove some more…….under the knife again, they managed to remove approx. 70%.

Ted was kept in intensive care for quite a while after that op. He suffered massive seizures and close monitoring revealed he had started with diabetes insipidus (which he now has 3 lots of daily medication to keep at bay and will have for the rest of his life)

As well as thiroid and hormone replacements.

It was also revealed that he had lost the sight in his right eye due to the tumour squashing the optic nerve, this cannot be rectified and is something else he will have to live with.

The tumour is still very large, and it was crucial the new chemo was started as soon as he could handle it.

After 3 months the first MRI showed a tiny shrinkage….the best possible news.

Continued with the chemo, which came with all the side effects. Sickness, blood transfusions, platelet transfusions, lethargic, regularly neutropenic and picking up lots of bugs being kept in a few times for 48hours on IV antibiotics.

The second MRI wasn’t the best news, the tumour had tuned into more of a solid mass and it was discussed he might need to change treatment again. In the two weeks that followed receiving that news he had an allergic reaction to platelets and then an allergic reaction to one of his chemotherapies.

He has changed to 2 new chemo’s and although we have not seen any scans we are very positive for the future all due to Teds amazing attitude and strength.

He is fed by an Ng tube up his nose straight into his stomach usually with a machine as he is sick if the feed goes in too quick.

Ted is the happiest child you could ever hope to meet, he is a comedian and loves to make people laugh. He has the gentlest, kind soul.

He has 3 older brothers who idolise him as he does with them. He inspires so many people to be positive.

He loves the characters from guardians of the galaxy, especially Groot and dances along withany type of music. He isn’t really interested in TV but loves people and singing and dancing. As soon as he hears music he can’t help but dance along.

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