The "Love Me Love My Face" Charity.

“Love me love my Face” is a New Charity, Registration number: 1170132 that was formed on the 11th November 2016. The driving force behind the Charity is a young man called Jono Lancaster who was featured in a television documentary of the same name, about children born with Crano Facial deformities like his.

This year, as in previous years, the Revive Running Club are raising money by running the London 16 mile “Monopoly Board” for a charity that is personal to one or more of the runners.

“Running For Ryan”

Ryan is seventeen months old and was born ten weeks premature, which is always a challenge, but Ryan was also born with a genetic disorder that he inherited from his mother. Ryan was born with “Treacher Collins Syndrome” (TCS).

TCS is a congenital disorder characterized by craniofacial deformities, typically involving the ears, eyes, cheekbones, and jawbone. Those affected have normal intelligence. The typical physical features include downward-slanting eyes a small lower jaw, conductive hearing loss, and malformed or absent ears, but they can vary dramatically between affected people. These physical features can cause problems breathing, hearing, and feeding.

Ryan was born with a cleft palate and he has no outer ears. A feeding pump feeds him eighteen hours a day through a tube into his intestine, he also has a tracheostomy to assist his breathing and he wears two hearing aids. Despite all this, Ryan is a very contented little boy with a fantastic personality!

There are many children born with TCS and the new Charity called “Love Me Love My Face” has been launched to help parents cope with babies born with TCS.

Their tagline is “Raising Awareness and supporting individuals and families with Treacher Collins Syndrome and Craniofacial Conditions. “

The funds raised by the running club will go to this charity to support children born with TCS.