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Karen Parsons raised £80 from 5 supporters
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Closed 31/12/2018
Iʼve raised £80 to assist Theo in receiving the correct educational and health care,
- wiltshire UK
- Funded on Monday, 31st December 2018
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Story
The Back Story.
I finally fell pregnant with Theo after years of trying, when he was born he weighed a huge 10lb 7oz :) it was apparent from birth that he was not like other babies but it took me 18 months of nagging to get a doctor to listen to me.
Theo was referred to Dr Higgs at Bath, she diagnosed him as ASD when he was 18 months old, I knew this was not all so after persisting and a vary worrying period when we thought he had cancer; we found the answers we were looking for The has the following;
Subependymal grey matter heterotipa
Epilepsy and daily seizures
Autism
Language Difficulties
Poor balance, motor skills, coordination
Significant allergies, eczema, anaphalyxes
Neuronal migration syndrome
Learning difficulties
Sleep difficulties
Adhd
Add
PDA
Variable Scoliosis
Theo also uses a wheelchair and cannot be left alone, he has very low muscle tone which means he cannot do simple things like hold a knife and fork nor do his shoes up, I still wipe his bum.
Theo is a fab little boy, he has a younger brother Jacob (9) but no friends, hes not been invited to a party since he was 5
Theo has the following people working on his behalf;
neurologist
pediatrician
gp
Disability social worker
Lead send worker (who decides ehcp)
Educational Psychologist
SALT
Behavioural nurse (never met him and discharged him)
CHAMS (discharged him after seeing him once)
for 4 years I have been fighting to get him seen by a physiotherapist and Occupational therapist - I'm still waiting
The above specialists have Helped Theo in many ways and his medical team as constantly seeing him, however, it has come to the point in his life that the council's Educational Psychologist, SALT team and OT/PT reports - along with his original Statement of Educational Need has not been taken into account by his SEND Lead worker and their team . They have decided that Theo needs no extra help in school with his education or complex health requirements. Although his original Statement of Educational Need included all of the requirements.
The money raised is being used to help fund all the specialist reports that need to be carried out before I appeal the decision - this case in all likely-hood will go to tribunal. I will win this as Theo will never "get better" and will always need extra assistance, although the council seem to think he will.
for any money raised that does not get used to help pay for the fees to help Theo; they will be sent to North Wiltshire Portage Services who are a charity that employ Early years sen workers to go to children's houses for a couple of hours a week. the children who benefit greatly from this are children with all kinds of Disabilities. They are essentially given the same opportunities as a child would get in pre school but on a 1 to 1 basis and tailored to their specific needs. I have always said that if I won the lottery I would help this charity as it costs 1500 a term per child.
I am not the kind of person who wastes money and if its money for my children it goes to them, so I think this is the best place for any extra funds go x
Updates
3
- 7 years ago
Karen Parsons
7 years agoShare this update to help us raise more
- 7 years ago
Karen Parsons
7 years agopeople have been messaging me regarding why I say finally fell pregnant, well the truth is I could not have children without the help of medical intervention so Theo was conceived with the help of doctors and specialists, to whom I will be eternally grateful as without them I would never had got the chance to become a mummy. xx
Share this update to help us raise more
- 7 years ago
Karen Parsons
7 years agoShare this update to help us raise more
Karen Parsons started crowdfunding
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Supporters
5
Kerrie Bailey
Jan 17, 2018
I hope you raise the money needed! I hope that Theo gets the support he truly needs! Having two sen children myself! Xx
£20.00
Vicky Worrell
Jan 14, 2018
£30.00
Claire Bance
Jan 14, 2018
£10.00
Ilona Barretta
Jan 14, 2018
Never forgot how sweet you were to Luca when he accosted you at the M25 services to see your dog. We both know not everyone is that nice to our kids, so it meant a lot to me. You are a great mum! x
£10.00
Debbie Stearne
Jan 14, 2018
For Theo
£10.00
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