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Closed 28/11/2016

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raised of £200 target by 0 supporters

    Weʼve raised £0 to to supporchildren amd their families with hemimegalencephaly. a rare condition which effects just 1 in 1 million people in the UK

    Closed on Monday, 28th November 2016

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    Story

    Hemimegalencephaly is a rare condition which effects just 1 in a million children in the UK.
    This condition can see children have more than 100 epileptic seizures in a day.
    by raising funds we can help contribute to research and support here in the UK.

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    Theresa Hannen

    Updates appear here

      8 years ago

      Theresa Hannen started crowdfunding

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      Page last updated on: 10/29/2016 08.14

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        Theresa Hannen

        Theresa Hannen

        today my mum, sister in law and myself will get a tattoo of the official symbol for HME. This is to help raise awareness of this rare condition. If you would like to help and support us please donate a few pounds which will be passed on to the charity.

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