so far most of leytons check ups every 3 month have been ok, but unfortunately last wednesday we where given the sad news by his cardiologist that leytons left side of the heart ( the parts that they have worked so hard on and done so brilliantly with )is leaking ;-( now this isn’t fluid where is duretics can stop the fluid build up,this is blood leaking and flowing the wrong way, but the even sadder news is it’s that rare it doesn’t even have a name or a solution and all we can do is wait for the outcome, until then we can only monitor him xx

hi everyone long time no hear, we’ve been so busy fundraising and carbooting we forget we have this page sometimes ;-o plus i’ve been busy doing leytons scensory room for him and his cousins at my house too time just flies, it’s great that just giving have just emailed me asking me to set up their new monthly subscription button where supporters can set up a monthly ongoing payment to his fund as apposed to a large lump sum some people just can’t afford, so it’s great they have done this, it helps all round, i’ll update leytons situation soon x