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I've raised £3000 to Defending William against Duchenne

Organised by Thomas Vincent
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Disability support

Story

I have decided to get rid of my Dad bod while raising money for William. Here is a little bit about what William has been through:

William was diagnosed in January 2016 at the age of 3 with Duchenne Muscular Dystrophy (DMD). This was a diagnosis that was totally out of the blue and a complete shock to the whole family.

Duchenne Muscular Dystrophy is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected by DMD. It is a devastating, progressive and currently incurable, muscle-wasting disease.

Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.

Life expectancy is improving as standards of care and knowledge about Duchenne in crease however, there is currently no cure for Duchenne.

About fundraiser

Thomas Vincent
Organiser

Donation summary

Total
£7,610.75