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Three Days of August

Three Days of August is crowdfunding

104%
£1,045
raised of £1,000 target by 70 supporters

Weʼre raising £1,000 to support the JCUH Neonatal unit in memory of August Joseph Stephens

Middlesbrough
3 days to go

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Story

On the 20th September at 11.53pm our beautiful little boy arrived into the world. I was absolutely besotted with him, the pain from labour and my failed VBAC didn’t matter anymore, because I was holding my gorgeous little boy. I didn’t want to take my eyes of him for a second and neither did his dad, we were both so relieved he arrived here safe and sound. After seeing his beautiful little face, we knew the name we had picked out suited him, our son was now August Joseph.

My husband kissed us both goodbye as we were moved to the postnatal ward to recover from my caesarean section. Due to the current coronavirus restrictions, there are no visitors allowed on the postnatal ward, but I thought to myself that doesn’t matter, we will be home soon enough.

The morning of the 22nd, I woke to find August sweating, so I whipped off his blanket and buzzed a midwife. She took his temperature; it was low. I thought “this cant be right, how can he sweat and be cold at the same time”. Before I knew it, doctors came from the Neonatal unit to run a few tests, I was left for 20 minutes without him, it felt like time stood still. When the doctors returned It was not the news I wanted to hear, they wanted to transfer him to the Neonatal department to run further tests as they did not know what was wrong with him. I went with August - it was the furthest I’d walked since the c-section, I no longer cared about myself I just wanted to be with my son to make sure he was safe.

I stood and watched as they moved him into an incubator and started attaching wires to monitor him (I felt useless, I just wanted to hold my son and tell him everything was going to be ok). Due to the tight restrictions, I was only allowed to stay with August for 2 hours a day. I did not want to leave his side. Looking back, they should have had to drag me out of that room, but I went knowing he was in safe hands and the doctors would look after him.

I was moved to a private room back on the postnatal ward, I remember thinking “how can I just sit in a room whilst my son was poorly”. I started pumping breastmilk to send down to him, it was the only thing that was keeping me going. It wasn’t until late that evening when doctors came to tell me that August was getting worse and that they still didn’t know why he was so poorly. I was allowed back down to see my little man that night, I remember gazing into the incubator holding his little hand and willing for him to get better - for only minutes later to watch him stop breathing! I froze as doctors rushed around him to resuscitate his tiny little body. Thankfully, they did. It wasn’t until then that I actually released how serious this was.

The following day was the worst day of my entire life. I reluctantly returned to my room on the postnatal ward and through sheer exhaustion, I had managed to get some sleep. I feel so guilty thinking about it now; I was sleeping whilst my son was fighting for his life. I was awoken by my midwife to say that the NICU needed me pronto. She no sooner had me in a wheel chair and I was getting whizzed down the corridor so fast in the sheer panic (I could hardly walk after doing too much too soon after my operation), I could feel how much she cared through her actions in that moment.

I was brought into a room where I was met by the consultant doctor who told me that my little boy had just had a cardiac arrest and he had luckily managed to get his little heart going again, but he wasn’t sure how much time before it may happen again. The doctor told me that they had managed to find what might be wrong with him: Ornithine Transcarbamylase (OTC) deficiency - it is a metabolic problem with his urea cycle. August couldn’t remove the waste from a feed, meaning toxic levels of ammonia built up in his blood (basically poisoning his body). I could not believe what I heard next “there is no cure”. Giving the doctors permission to turn off August’s life support was the hardest thing I have ever had to do, it’s a decision that no parent should ever have to make.

The doctors removed all the wires and tubes before I finally got to hold my son again, the hospital bent the rules and allowed a few family members to meet him. They had to say hello and goodbye at the same time, some close family never even had that privilege, due to the pandemic. I held August as he took his last breath surrounded by love and support from family and the hospital staff. That was the only thing I could do for my son was let him die peacefully.

OTC is an inherited condition from the mother’s side, and it only affects boys, which is why me and my daughter are unaffected by this hidden deficiency. We were so excited to finally have a boy in the family, as we have five generations of girls. I can’t stop thinking about how my baby would still be alive, if only he was a girl. We are still waiting on DNA confirmation that this is what was wrong with August, but I am told by doctors that they are 99% sure this is what took August from us far too soon.

I can’t thank hospital staff enough for the love and compassion they showed August and my family during our time in the neonatal unit. Which is why we would like to raise some funds for the unit and to hopefully help save babies lives. My boy could not be saved that day, but I hope that we can raise enough money to buy a vital piece of equipment so more babies can go home with their families.

Thank you for taking the time to read.

Jess, Adam & Evelyn

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Updates

3

  • Three Days of August1 month ago
    Three Days of August

    Three Days of August

    1 month ago

    I just want to thank everyone who has donated money in August's Memory. I truly am in awe of how much we have raised so far. We plan on leaving his Just giving page open for donations even though we have reached our initial target. I am sure every penny donated will make a huge difference.

    Update from the Page owner

    Share this update to help us raise more

  • Three Days of August7 months ago
    Three Days of August

    Three Days of August

    7 months ago

    Just wanted to say thank you to everyone who has donated. I am pleased to say we have raised £1128 including offline donations. I am so grateful for everyone's support. Keep sharing August's story ⭐

    Update from the Page owner

    Share this update to help us raise more

  • Three Days of August7 months ago
    Three Days of August

    Three Days of August

    7 months ago
    Update from the Page owner

    It absolutely means the world to us that you guys are willing to help raise awareness for August. Every share or donation, no matter the size means the world to us and will help families who face similar traumatic situations. I'm sorry it has taken me some time to come on here and update you, as you can imagine we are struggling with August's Death. We are almost at our target and I am going to be hosting some online raffles to raise further funds, keep an eye on my social media.

    Share this update to help us raise more

10 months ago

Three Days of August started crowdfunding

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Page last updated on: 8/6/2021 10.49

Supporters

70

  • Anonymous

    Anonymous

    Aug 5, 2021

  • Rachael Arbon

    Rachael Arbon

    Aug 5, 2021

    Donated by staff at Punch Robson Solicitors who took part in the Euro 2021 sweepstake. Sent with love xx

    £20.00

  • Anonymous

    Anonymous

    May 22, 2021

    £40.00

  • Rach

    Rach

    Apr 22, 2021

    Kindness Rocks. Love to you, Adam and Evelyn. X

    £10.00

  • Vikki Charlton - Myers

    Vikki Charlton - Myers

    Apr 18, 2021

    Kindness Rocks! ❤️

    £5.00

  • Helen Largan

    Helen Largan

    Apr 17, 2021

    Kindness RocksThank you for making a difference in August's memory.

    £5.00

  • Emma Walker

    Emma Walker

    Apr 15, 2021

    Kindness rocks

    £5.00

Three Days of August

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Three Days of August

Three Days of August

Middlesbrough

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