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Neil Bindemann raised £2,784 from 53 supporters

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Closed 30/06/2023

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£2,784
raised of £5,000 target by 53 supporters

    Weʼve raised £2,784 to support the work of Brainstrust, Matthew's Friends and the Lifestyle Health Foundation

    Funded on Friday, 30th June 2023

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    Story

    Turning an 8 yr brain tumour living experience into a fun(d)raising celebration

    It will be 8 years this March when Neil returned home having undergone urgent, life-saving surgery at Kings College Hospital, because of a brain tumour sitting in the middle of his brain. The discover of the tumour helped explain various symptom he experienced including, his gradual unsteadiness, headaches, and why one night, returning from the loo, he completely missed the bedroom door. It was at that moment he realised that something was seriously wrong, and one that he shared with Dr Linda Mizun, from AfternoonTeawithdocs.com, in an online conversation. During their conversation, Linda happen to ask Neil how he felt, prior to going to hospital. He explained that was probably one of the most scary and significant moments, until he found himself in a room at Kings College Hospital being told he couldn't go home and that they were preparing a bed for him to have urgent surgery. They had spotted a growth in his brain following an MRI scan.

    What makes all this a little ironic, as some of people reading this may know, Neil is a neuroscientist who founded and runs the Person-Centred Neurosciences Society. But as he explain in article published last year; it is thanks to those eight years of a living experience, that he has gained an understanding of how, by becoming trauma informed, he can, through his 'day job' look for opportunities to help make a difference to the quality of life of others, who may find themselves in a less fortunate situation than Neil, and how are living with a neurological diagnosis.

    So that, in part, is what has driven him to organise the #TonbridgeTeafest. A one day 'fun(d)raising' event so he can thank those organisations, people and their families, who give so much support and help to people, like Neil, but also those who have perhaps been less fortunate than Neil, when it comes to a living, or perhaps lived experience, with a brain tumour.

    They are the Brainstrust, who provide a wonderful service in supporting the quality of life of people and families living with brain tumours, along with Matthew's Friends , who’s specialist dietitian advised me when I started the #ketogenicdiet, to help slow the growth of the brain tumour. Although, the diet is better know in the healthcare world for successfully controlling epilepsy seizures, especially in children.

    So Tonbridge Teafest will combine his love of music with a desire to showcase how it is possible to run cake sales with next to no sugar; something he has coined kakesales. This is because many of the cakes on offer during the Tonbridge Teafest can be eaten by people who follow a low carb and ketogenic lifestyle.

    Of course, not everyone, who may wish to support the fundraising efforts for Brainstrust, Matthews Friends and Lifestyle Health Foundation (a Tonbridge based Foundation set up by Neil, which you can learn about from www.lifestylehealth.org.uk) can make it along to Tonbridge on 29th of April 2023 (postponed from 2022, due to the death of the Queen) to enjoy the delicious kakes and the music to be performed by various local music groups.

    Due to the postponement of the Teafest, we had to set up this new Justgiving page. The funds we had raised up to the point original page was closed by Justgiving, will be transferred to this page.

    Our hope it that by the end of the Teafest will have hit our target of £5000, which is to be shared evenly between the three organisations.

    It just leaves us to thank everyone who is getting behind this event and for your support. Neil wish anyone who visits and is able to support the fundraising, that your support means a great deal as it is contributing to and enabling him to transform what was rather traumatising experience into what he know described as a wonderful 'loved experience'. To help explain what he means by that, here is a clip from his conversation with Dr Linda Mizun.

    Updates

    7

    • Neil Bindemann10 months ago
      Neil Bindemann

      Neil Bindemann

      10 months ago

      What a fabulous fun day we had running the Tonbridge Teafest and Kakesale. I'm absolutely delighted to share that we raised a further £1000 toward the target of £5000. Here's one of the pictures to capture the musical atmosphere around the town which began at 10:30 with music heard from this venue, the Tonbridge Old Firestation, as well as the Tonbridge Parish Church , the Riverwalk, Verdigris and Nancy's Tearooms. The focus of afternoon from lunch time onwards was on the church where the Sevenoaks and Tonbridge Concert band performed.

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    • Neil Bindemann10 months ago
      Neil Bindemann

      Neil Bindemann

      10 months ago

      A special moment for me from Sat when the Mayor of Tonbridge and Malling came to Tonbridge Parish church, one of the Tonbridge Teafest venues to celebrate my dear friend Pip. Pip was there playing the drums with the Roarin 20s and in a few months time will be receiving that special telegram from the King. Yes, it’s hard to believe that he is to be 100years young!

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    • Neil Bindemann10 months ago
      Neil Bindemann

      Neil Bindemann

      10 months ago

      Please can I draw attention to the change of venue for the afternoon concert, due to the Tonbridge Castle lawn being waterlogged. The concert is now in the main Tonbridge Parish Church.

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    1 year ago

    Neil Bindemann started crowdfunding

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    Page last updated on: 6/20/2023 17.37

    Supporters

    53

    • Hugo

      Hugo

      Jun 20, 2023

      Thank you

      £40.00

    • Mike Lewis

      Mike Lewis

      May 23, 2023

      Best wishes for all your work for a number of great causes

      £50.00

    • Sharon Davenport

      Sharon Davenport

      May 15, 2023

      Great commitment Neil

    • Anonymous

      Anonymous

      May 3, 2023

      £100.00

    • Anita Williams

      Anita Williams

      May 2, 2023

      Happy Birthday Neil!

      £30.00

    • Ethan Collin

      Ethan Collin

      May 1, 2023

      £10.00

    • Amanda

      Amanda

      May 1, 2023

      Thank you for organising a great event!

      £20.00

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    About the fundraiser
    Neil Bindemann

    Neil Bindemann

    Neil, who completed a neuroscience PhD following is Immunology BSc, and founded the Person-Centred Neurosciences Society (P-CNS), received the news, following urgent brain surgery in 2015, that he had a brain tumour. The last 8 years have enabled him to become trauma-informed.

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