Albert was born with a moderate/severe hearing loss in both ears. The hospital run a few blood tests for common causes of hearing loss and all come back OK. So we just assumed it was just one of those things until 2 years ago I started noticing that Albert was dealing with light sensitivity. I took Albert for eye tests all come back OK. They run some further investigation into Albert's blood and confirmed Albert had Ushers Syndrome. Ushers syndrome is the most common cause of combined deaf and blindness (strangely as it extremely rare) being such a rare condition means not alot of funding and research goes into possible cures for ushers.
FIRST STEP are a local charity based in hornchurch that help children with disabilities and the families of those children.
Thank You