Weʼve raised £162 to Raise awareness and treatment funding for children with PANDAS/PANS
- Isle of Wight, United Kingdom
- Funded on Sunday, 8th October 2017
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Who We Are
PANDAS/PANS UK is a group of parents and medical volunteers focused on raising awareness of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)
http://pandaspansuk.my-free.website/PANDAS PANS UK
Our Mission is Simple
· To raise awareness of PANS/PANDAS in the UK
· To support the medical community in their quest to treat children suffering from PANS/PANDAS
· To look for ways to expand the limited medical care available
· To create opportunities to assist families searching for solutions
· To ultimately raise funds for much needed research
What is PANS / PANDAS ?
Pediatric Acute-onset Neuropsychiatric Syndrome
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections
PANS and PANDAS are conditions where a subset of children and adolescents experience an encephalitic-like onset of neuropsychiatric symptoms following exposure to a trigger such as Strep, Pneumonia, Influenza, Mononucleosis, Environmental Factors and other.
In simple terms, antibodies created to fight the infection become misdirected and attack a small area of the brain known as the basal ganglia. This autoimmune reaction results in an acute onset of neuropsychiatric symptoms. Both PANS and PANDAS are clinical diagnoses. PANDAS is a subset of PANS. The initial trigger of PANDAS is Strep however secondary triggers are not relegated to only strep. The initial triggers for PANS can include Influenza, Pneumonia, Mononucleosis, other pathogens, Environmental Factors and other factors.
Awareness of PANS/PANADS does not yet translate into readily available medical or community support resulting in significant difficulties for families of children with PANDAS or PANS.
Updates appear here
Tori Blain started crowdfunding
Leave a message of support
Sep 5, 2017
Hi tori. Am donating £10 for the wristbands vip thing. Will be at the day in the morning😊
Aug 30, 2017
In spite of working full time in Healthcare, spending spare time in the entertainment of us all, you also add the additional burden of support for those afflicted with Pandas/Pans as well. Fantastic !
Aug 30, 2017
Gabs and Clare
Aug 11, 2017
Aug 10, 2017
Good on ya x
Aug 9, 2017
Testing it works!
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About the fundraiser
Isle of Wight, United Kingdom
I am involved with a small team raising treatment funds and awareness for PANDAS/PANS I am organising a Family Fun Day and will be joining the efforts of my colleagues to spread the word far and wide!
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