​
Who We Are
PANDAS/PANS UK is a group of parents and medical volunteers focused on raising awareness of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)

http://pandaspansuk.my-free.website/PANDAS PANS UK

Our Mission is Simple
· To raise awareness of PANS/PANDAS in the UK
· To support the medical community in their quest to treat children suffering from PANS/PANDAS
· To look for ways to expand the limited medical care available
· To create opportunities to assist families searching for solutions
· To ultimately raise funds for much needed research

What is PANS / PANDAS ?
PANS
Pediatric Acute-onset Neuropsychiatric Syndrome
PANDAS
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections

PANS and PANDAS are conditions where a subset of children and adolescents experience an encephalitic-like onset of neuropsychiatric symptoms following exposure to a trigger such as Strep, Pneumonia, Influenza, Mononucleosis, Environmental Factors and other.
In simple terms, antibodies created to fight the infection become misdirected and attack a small area of the brain known as the basal ganglia. This autoimmune reaction results in an acute onset of neuropsychiatric symptoms. Both PANS and PANDAS are clinical diagnoses. PANDAS is a subset of PANS. The initial trigger of PANDAS is Strep however secondary triggers are not relegated to only strep. The initial triggers for PANS can include Influenza, Pneumonia, Mononucleosis, other pathogens, Environmental Factors and other factors.

Awareness of PANS/PANADS does not yet translate into readily available medical or community support resulting in significant difficulties for families of children with PANDAS or PANS.