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Tori Blain raised £162 from 6 supporters.

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Closed 08/10/2017

16%
£162raised of £1,000 target by 6 supporters

    Weʼve raised £162 to Raise awareness and treatment funding for children with PANDAS/PANS

    Location
    Isle of Wight, United Kingdom
    Time left
    Funded on Sunday, 8th October 2017

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    Story


    Who We Are
    PANDAS/PANS UK is a group of parents and medical volunteers focused on raising awareness of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)

    http://pandaspansuk.my-free.website/PANDAS PANS UK

    Our Mission is Simple
    · To raise awareness of PANS/PANDAS in the UK
    · To support the medical community in their quest to treat children suffering from PANS/PANDAS
    · To look for ways to expand the limited medical care available
    · To create opportunities to assist families searching for solutions
    · To ultimately raise funds for much needed research

    What is PANS / PANDAS ?
    PANS
    Pediatric Acute-onset Neuropsychiatric Syndrome
    PANDAS
    Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections

    PANS and PANDAS are conditions where a subset of children and adolescents experience an encephalitic-like onset of neuropsychiatric symptoms following exposure to a trigger such as Strep, Pneumonia, Influenza, Mononucleosis, Environmental Factors and other.
    In simple terms, antibodies created to fight the infection become misdirected and attack a small area of the brain known as the basal ganglia. This autoimmune reaction results in an acute onset of neuropsychiatric symptoms. Both PANS and PANDAS are clinical diagnoses. PANDAS is a subset of PANS. The initial trigger of PANDAS is Strep however secondary triggers are not relegated to only strep. The initial triggers for PANS can include Influenza, Pneumonia, Mononucleosis, other pathogens, Environmental Factors and other factors.

    Awareness of PANS/PANADS does not yet translate into readily available medical or community support resulting in significant difficulties for families of children with PANDAS or PANS.

    Updates

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    Tori Blain

    Updates appear here

      7 months ago

      Tori Blain started crowdfunding

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      Supporters

      6

      • Anonymous

        Anonymous

        Sep 5, 2017

        Hi tori. Am donating £10 for the wristbands vip thing. Will be at the day in the morning😊

        £10.00

      • Bruce Masters

        Bruce Masters

        Aug 30, 2017

        In spite of working full time in Healthcare, spending spare time in the entertainment of us all, you also add the additional burden of support for those afflicted with Pandas/Pans as well. Fantastic !

        £20.00

      • Andrea  Mueller

        Andrea Mueller

        Aug 30, 2017

        £100.00

      • Gabs and Clare

        Gabs and Clare

        Aug 11, 2017

        Gabby VIP

        £10.00

      • Pat

        Pat

        Aug 10, 2017

        Good on ya x

        £20.00

      • Monkey

        Monkey

        Aug 9, 2017

        Testing it works!

        £2.00

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      About Crowdfunding
      About the fundraiser
      Tori Blain

      Tori Blain

      Isle of Wight, United Kingdom

      I am involved with a small team raising treatment funds and awareness for PANDAS/PANS I am organising a Family Fun Day and will be joining the efforts of my colleagues to spread the word far and wide!

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