Lila was 4 years old when she was diagnosed with nephrotic syndrom which is a kidney disease the protein that goes around your kidneys it leaks out and the fluids spread all over her body which means she can retain anything from 6 to 8 kilos over the years her condition has gotten worse. she is now awaiting a major operation which her kidneys will be removed and she will live on dialydid until a atch is found the last 5 and a half years have been a big rollercoaster she is now broiviec line fitted which she recieves treatment through which she in now daily dependent is lila misses 1day she becomes really poorly she is also as a ng tube fitted and as a milk feed through as she has lost a lot of body mass.