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C Cutajar raised £57,261.77 from 1275 supporters

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Closed 12/09/2019

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£57,261raised of £50,000 target by 1275 supporters

    Weʼve raised £57,261 to help fund the cost of life saving treatment for little Oakley who is suffering from a rare and aggressive childhood cancer.

    Funded on Thursday, 12th September 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    We’re raising £50,000 on behalf of my brother, Louis Cutajar, and his partner, Jenna, to help fund the cost of life saving treatment for their son who is suffering from a rare and aggressive childhood cancer.

    Not everyone is lucky enough to have a good start in life, for some just normal would be great. This can’t be any more true for my little nephew, Oakley, in what has been the toughest start to life I could ever imagine.

    Born in August 2018, he was diagnosed with a rare eye condition PFV, which meant he would never have sight in one eye. Just as the family began to deal with such devastating news, things got worse. In Jan 2019, with what was believed to be an infection, the eye began to swell. Antibiotics seemed to reduce the swelling, but within 2 weeks the eye had swollen significantly. He was again referred to Great Ormond Street Hospital (GOSH), who’d been involved in his diagnosis of PFV, where they decided to remove the eye. As awful as it sounds, it was a relief. No more PFV, we can move on and help little Oakley adjust to lead a normal life. They carried out a biopsy on some tissue just to be sure. Within 2 weeks the swelling came back. They were rushed back to GOSH where there was more awful news. Oakley was diagnosed with a rare and aggressive childhood cancer, a rhabdoid tumour.

    Further scans showed it had spread to a kidney.

    He started chemo the next day. This was Feb 2019. They have been at GOSH ever since.

    Oakley is fighting hard. The chemo is tough on an 8 month old body. He still laughs and smile some days.

    It’s a rollercoaster. There’s been good news. There’s no sign of it on his kidney now. The primary tumour was shrinking, but it’s now starting to grow.

    For Oakley to have the best chance of recovering the tumour needs to be kept under control and removed. This then to be followed by high dose chemotherapy (chemo so strong that his body needs to be bathed every 3 hours to prevent the chemo coming out of his pores and burning his skin) and radiotherapy. GOSH are suggesting that for part of this treatment he is transferred to Holland to undergo the surgery to remove the tumour and have pioneering radiotherapy rod treatment. This will minimise the amount of facial tissue that they will need to remove, whilst ensuring all cancerous cells are eliminated. There will also be reconstruction work involved.

    They have been told that this treatment is not available on the NHS and will have to be self-funded. The cost is €50,000. We’re trying to raise this fund to give Oakley access to this treatment and other treatment he is likely to need to give him the best chance of winning his fight and living as normal a life as possible.

    Little Oakley was selected by staff at GOSH to feature in Paul O’Grady’s Little Heroes TV programme as he is such an inspiration to all. Louis and Jenna declined as they didn’t want his little face all over media. For the same reason I’ve not included pictures of Oakley since he’s started his treatment.

    Louis, Jenna and both their families will be extremely grateful for any donation to help save our little Oaks.

    Updates

    2

    • C Cutajar6 months ago
      C Cutajar

      C Cutajar

      6 months ago

      So 9 days after we started this crowdfunding page, we’re now over 60% of our £50k target. What a huge achievement!! Thank you all for you kindness and generosity....we are blown away by the amount of people getting involved to help get our special little Oakley the treatment he so desperately needs. Thank you, thank you, thank you xx

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    • C Cutajar6 months ago
      C Cutajar

      C Cutajar

      6 months ago

      On behalf of my brother Louis and his partner Jenna, we just want to say a massive thank you to everyone that has donated so far. We're overwhelmed by the response and generosity of everyone. There's so many fundraising activities going on. Please like and share our page "Oakley's Story" on Facebook. We'll use it to update everyone on Oakley's progress and the different things going on to help raise money for his treatment. Please keep sharing the page and spreading the word. Oakley's army is growing by the hour......

      Share this update to help us raise more

    6 months ago

    C Cutajar started crowdfunding

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    Page last updated on: 9/5/2019 22.27

    Supporters

    1275

    • Anonymous

      Anonymous

      Sep 5, 2019

      £20.00

    • India Baylis

      India Baylis

      Jul 26, 2019

      From Aviva’s bake sale

      £113.50

    • Anonymous

      Anonymous

      Jul 25, 2019

      Rest in peace mighty Oak

    • Anonymous

      Anonymous

      Jul 22, 2019

      Money raised in previous fundraising. This money can be used towards the funeral or anything else you may need. We are so heartbroken for you all. Sending love always.

      £100.00

    • Anonymous

      Anonymous

      Jul 18, 2019

      Fund raised from Aviva Event

      £335.21

    • Graeme Brough

      Graeme Brough

      Jul 15, 2019

    • Anonymous

      Anonymous

      Jul 7, 2019

      From the coffee morning at the Hatfield hotel Lowestoft .

      £196.85

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    C Cutajar

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