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C Cutajar

C Cutajar is crowdfunding

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£46,390raised of £50,000 target by 1259 supporters

Weʼre raising £50,000 to help fund the cost of life saving treatment for little Oakley who is suffering from a rare and aggressive childhood cancer.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

We’re raising £50,000 on behalf of my brother, Louis Cutajar, and his partner, Jenna, to help fund the cost of life saving treatment for their son who is suffering from a rare and aggressive childhood cancer.

Not everyone is lucky enough to have a good start in life, for some just normal would be great. This can’t be any more true for my little nephew, Oakley, in what has been the toughest start to life I could ever imagine.

Born in August 2018, he was diagnosed with a rare eye condition PFV, which meant he would never have sight in one eye. Just as the family began to deal with such devastating news, things got worse. In Jan 2019, with what was believed to be an infection, the eye began to swell. Antibiotics seemed to reduce the swelling, but within 2 weeks the eye had swollen significantly. He was again referred to Great Ormond Street Hospital (GOSH), who’d been involved in his diagnosis of PFV, where they decided to remove the eye. As awful as it sounds, it was a relief. No more PFV, we can move on and help little Oakley adjust to lead a normal life. They carried out a biopsy on some tissue just to be sure. Within 2 weeks the swelling came back. They were rushed back to GOSH where there was more awful news. Oakley was diagnosed with a rare and aggressive childhood cancer, a rhabdoid tumour.

Further scans showed it had spread to a kidney.

He started chemo the next day. This was Feb 2019. They have been at GOSH ever since.

Oakley is fighting hard. The chemo is tough on an 8 month old body. He still laughs and smile some days.

It’s a rollercoaster. There’s been good news. There’s no sign of it on his kidney now. The primary tumour was shrinking, but it’s now starting to grow.

For Oakley to have the best chance of recovering the tumour needs to be kept under control and removed. This then to be followed by high dose chemotherapy (chemo so strong that his body needs to be bathed every 3 hours to prevent the chemo coming out of his pores and burning his skin) and radiotherapy. GOSH are suggesting that for part of this treatment he is transferred to Holland to undergo the surgery to remove the tumour and have pioneering radiotherapy rod treatment. This will minimise the amount of facial tissue that they will need to remove, whilst ensuring all cancerous cells are eliminated. There will also be reconstruction work involved.

They have been told that this treatment is not available on the NHS and will have to be self-funded. The cost is €50,000. We’re trying to raise this fund to give Oakley access to this treatment and other treatment he is likely to need to give him the best chance of winning his fight and living as normal a life as possible.

Little Oakley was selected by staff at GOSH to feature in Paul O’Grady’s Little Heroes TV programme as he is such an inspiration to all. Louis and Jenna declined as they didn’t want his little face all over media. For the same reason I’ve not included pictures of Oakley since he’s started his treatment.

Louis, Jenna and both their families will be extremely grateful for any donation to help save our little Oaks.

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Updates

2

  • C Cutajar1 month ago
    C Cutajar

    C Cutajar

    1 month ago

    So 9 days after we started this crowdfunding page, we’re now over 60% of our £50k target. What a huge achievement!! Thank you all for you kindness and generosity....we are blown away by the amount of people getting involved to help get our special little Oakley the treatment he so desperately needs. Thank you, thank you, thank you xx

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  • C Cutajar1 month ago
    C Cutajar

    C Cutajar

    1 month ago

    On behalf of my brother Louis and his partner Jenna, we just want to say a massive thank you to everyone that has donated so far. We're overwhelmed by the response and generosity of everyone. There's so many fundraising activities going on. Please like and share our page "Oakley's Story" on Facebook. We'll use it to update everyone on Oakley's progress and the different things going on to help raise money for his treatment. Please keep sharing the page and spreading the word. Oakley's army is growing by the hour......

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1 month ago

C Cutajar started crowdfunding

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Page last updated on: 6/25/2019 10.28

Supporters

1259

  • Anonymous

    Anonymous

    Jun 25, 2019

    Well done to everyone who attended the coffee and cake day thurs 20th june. Thank u all for your support. We raised £176.60 for little oakley x

    £176.60

  • Anonymous

    Anonymous

    Jun 24, 2019

    We wish Oakley the very best of luck with his treatment and recovery.

    £50.00

  • Simon

    Simon

    Jun 22, 2019

    Saw the poster in Specsavers. Best wishes to your family.

    £5.00

  • Mel and Peter Tindsley

    Mel and Peter Tindsley

    Jun 21, 2019

    Good luck with your parachute jump Neil. Raising money for such a brave little bit

    £20.00

  • Emily Miller

    Emily Miller

    Jun 21, 2019

    The rest Of Toby Millers sponsor money for having his hair cut off for darling Oakley! Lots of love from our family to yours.xxxxxx

    £297.85

  • chris ebejer

    chris ebejer

    Jun 21, 2019

    donations from my work colleagues xxxxx

    £44.00

  • Carly Bryant

    Carly Bryant

    Jun 20, 2019

    With best wishes for you all xx

    £10.00

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