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Vikki & Team DWAD raised £15,008 from 534 supporters
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Closed 31/10/2022
Iʼve raised £15,008 to help find a cure for William's Duchenne Muscular Dystrophy
- Funded on Monday, 31st October 2022
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Story
There is nothing more satisfying than helping someone close to home and close to your heart. It’s been 4 years since my last big fund raiser for William and we’re not doing it by halves! This time it’s a Triathlon and it’s tying in with my 50th birthday, so a big group of us are going to swim 50 lengths of a 25mtr pool, bike 50k and run 5.0 miles. So, 50, 50, 5.0. That was the idea anyway. For me it’s been 12 years since I’ve done anything more than 1 bike ride, so this is no mean feat. My main focus is to get fit for it without getting injured because at 50 I can tell you this is hard. But so very, very worth it for William. Even if I crawl round I’ll do it.
William is our Amber’s best friend and they met at 2 weeks old on a play mat whilst Jo and I had a cuppa after the baby weigh in. It wasn’t until William’s 3rd birthday that he was diagnosed with DMD and Jo and Matt’s world tumbled down. As friends it was horrendous, and for them unimaginable. Little William had always kept himself to himself when the others were being rowdy, that was why. He is an incredibly wonderful little boy with such a character, if you don’t already know him, you must try and meet him. He’s very funny with a beaming smile. He and the rest of his family, Jo, Matt & sis Phoebe deserve as much joy together as possible. Let’s see what we can do.
If you could spare a few ££ towards finding a cure for Duchenne and for William to enjoy as many experiences in his life as possible we’d be so grateful. Thank you in advance and please come along to the John Clements Social Club on the morning of 3rd July to see us in action.
Lots of love Vikki and Team DWAD xx
William was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old. Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
Updates
5
- 2 years ago
Vikki & Team DWAD
2 years agoThank you all for supporting this cause. We had an amazing day on Sunday with all Triathletes completing their targets and over 100 fun runners taking part. Your support will really help William and others with Duchenne. To see more about William you can follow him on instagram @defendingwilliamdmd or on his website https://defendingwilliamagainstduchenne.wordpress.com/
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- 2 years ago
Vikki & Team DWAD
2 years agoThank you for the offline donation of £300 from William's Granny & Grandpa Godfrey xxxx
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- 2 years ago
Vikki & Team DWAD
2 years agoAn update from Vikki: “Wow, with more participants than I dreamt we’d have taking part in the triathlon, we have quickly smashed our target, so have now raised it to £6000. This amount would be incredible and will be put to very good use in partnership with Duchenne UK. When raising money for Duchenne UK it goes into William's Family & Friends Fund. This enables the family to choose which medical trials to put the funding towards. Thank you all again. Keep pushing on those bikes Team DWAD, we can do this.”
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Vikki & Team DWAD started crowdfunding
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Supporters
534
Elaine
Oct 2, 2022
Fantastic effort for a brilliant charity!
Erik Pyne
Sep 18, 2022
Go Louise!!!
£20.00
Pam and Kenny
Aug 8, 2022
A fantastic achievement Kat and for a very worthy cause. Well done xxx
£40.00
Jason Eaketts
Jul 23, 2022
Fabulous work Seeko and Vikki!!Heather and Jason x
£20.00
Derek
Jul 18, 2022
Sorry it's a bit late. Well done Carrie and all the team. Great cause!
£5.00
Jane E
Jul 17, 2022
What a fantastic event - we’ll done!
£30.00
Anonymous
Jul 16, 2022
£20.00
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